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Lisa Fayed

Stage 4 Throat Cancer Prognosis

By September 1, 2010

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We have learned  much about Michael Douglas' throat cancer since his interview with David Letterman. We now know that the actor is suffering from stage IV throat cancer. His publicist has told media outlets that Douglas has a tumor located at the base of the tongue. This tells us that the actor likely has oropharyngeal cancer, a specific type of throat cancer.

People have been quick to ask about the prognosis of a person with throat cancer. Michael Douglas told Dave Letterman he had an 80 percent survival rate, which is excellent for someone with advanced throat cancer. The fact that his cancer has not spread beyond the head and neck region is highly favorable for a successful treatment outcome. Age and general health are other factors that can influence a person's prognosis.

The actor is undergoing aggressive rounds of chemotherapy and radiation therapy, which can effectively treat these types of head and neck cancer cases, but not without side effects, of course. People who undergo treatment for head and neck cancer with chemo and radiation experience a multitude of side effects, such as hair loss, mouth sores, extremely dry skin, dry mouth, and skin rashes. Patients often have to be fed through a tube because swallowing is painful and difficult. Taste changes can be common, as well.

Have you undergone treatment for throat cancer? Share your story!

We want to know what advice you would give to Michael Douglas about cancer treatment and its side effects. Share your advice!

Comments
September 2, 2010 at 8:44 am
(1) Tony says:

Are you KIDDING ME? As a medical professional, I was taught in Med school (and according to the CURRENT MEDICAL DIAGNOSIS and TREATMENT textbook–pretty standard for docs), the 5-year survival rate is LESS THAN 10%. Stage 4 means his cancer has “hit the lymph-node superhighway” and GOD ONLY KNOWS WHERE ELSE it is–usually metastases go to the brain and stomach FIRST in head-and-neck cancer.

God bless and good luck, but I think Mike Douglas’ publicist IS FULL OF BULLS*iT.

September 2, 2010 at 12:41 pm
(2) Michelle says:

Oh, Tony…clearly in Medical School you skipped the class focusing on bedside manner and etiquette. Speaking as someone who has seen the devastating effects of cancer personally, really you could have phrased that with even a hint of class. I’m guessing your medical career hasn’t been so successful–not many reputable docs have time to comment on blogs…

September 2, 2010 at 3:31 pm
(3) Stephanie says:

I came across this while looking trying to cope with my father’s recent diagnoses of Stage IV cancer in his throat. I have two words for “Tony” and one of them begins with an “F”. “Michelle” is absolutely right about your complete and utter lack of bedside manner and you don’t have a shred of tact.

Get off of sites that people looking for support, encouragement and inspiration will visit as your rude, brash comments are severely unwelcome.

May you never prosper in the medical field.

September 2, 2010 at 3:49 pm
(4) Lynn says:

I understand everyones concerns for bedside manners. I recently had a love one pass away because there was to much concern about manners and empathy insteading telling the hard truth. death hit and everyone is not prepared because of concerns of feeling instead of the truth. To late to say good bye. So Tony has a valid point and don’t pass crappie judgement and espcially don’t wish bad things on people.

September 2, 2010 at 4:06 pm
(5) JamB. says:

Tony wasn’t talking to a patient, though. He was responding to a comment about someone with stage IV cancer having an 80% chance of survival, which sounds like BS to me. I’m not a medical professional, but I’ve worked in the cancer field, and even I know Douglas will almost certainly require a laryngectomy if he’s going to survive for any length fo time.

if there were truly an 80% chance of survival, we wouldn’t be talking stage IV…but more likely Stage II.

September 2, 2010 at 8:35 pm
(6) Nadir says:

Tony’s comment is removed from any emotion, just as it should be for a physician. Tony’s comment ends with God Bless, seems couple readers were short sighted. I did not see any lack of judgment nor lack of bedside manners/etiquette. Stage four was explained as is, and let’s just wish to your loved ones and Mr. Douglas a speedy recovery and my God be with you who, surely, must feel a tremendous pain to see your loved ones struggling with this disease. Peace and God Bless.

September 2, 2010 at 9:43 pm
(7) Tapas says:

Tony….Tony…rephrase it softly for people who want doctors to give them false hope in the name of “bed side” manners…..and then when the inevitable happens, are the first ones to sue you.

September 2, 2010 at 11:30 pm
(8) Gabbs says:

it is what it is folks-
I personally think Mr. Douglas was being a gracious guest more than anything else by minimizing his condition. Like he said to Letterman, “i’m on stage”.
Very sad-his appearance gave him away.
Let’s wish (w thoughts or prayers) this man all the best. There is no reason to get upset people, cancer is what it is- a nasty nasty illness.
Let’s fight cancer by donating to research. let’s “Fight for the cure”!!!

September 2, 2010 at 11:57 pm
(9) Carla Seedly says:

Follow the exposure of oil as the root cause of cancer on Twitter at:

https://twitter.com/doctorlee445/status/22820554491

Help get the message out and RePost and reTweet this.

September 3, 2010 at 12:19 am
(10) Bernice says:

I think harsh words to Tony and his comments were unfair. He was after all responding to a comment not to a patient & God bless sums up his thoughts. When I heard 80% survival @ stage 4 I thought gee whizz you must have a Dr who is a miracle worker on a direct line to God. I wish him all the luck and grace of God to pull thru this but stage 4 and no spreading? … I’m not as positive as he is.

September 3, 2010 at 3:25 am
(11) michelle says:

Nadir, Tony’s comments seemed full of emotion–ALL CAPS and the Bulls*&@t comment!! I have had to hear words from docs stating that a child with cancer may not survive and it can be done tactfully, without creating false hope or lawsuits, Lynn and Tapas.
As for Michael Douglas, may God bless him and his loved ones as they certainly will suffer along with him during his treatment. Clearly we would all agree that a positive attitude helps get people through many situations and maybe Michael Douglas needs to continue his beliefs for his recovery to see him through this trying time.

September 3, 2010 at 11:00 am
(12) BK says:

I think Michael Douglas got it wrong. That’s all. Either heard it wrong or interpreted it wrong. Which is perfectly understandable given the emotional nature of the diagnosis. Both my parents had cancer and many times weren’t clear on the facts or diagnosis for a lot of completely understandable reasons.

September 3, 2010 at 9:22 pm
(13) ang says:

hi tony, PLEASE respond to my comment!!!
My brother was diagnosed 18mths ago with stage one throat cancer, but his symptoms have returned ie: metalic taste etc!! doctor has said its due to burnt tongue syndrome and not related???? i would really appreciate some straight talking and some honest advice xx pls respond xx

September 4, 2010 at 12:47 pm
(14) Amaryllis says:

Stage IV head and neck cancer does not have an 80 percent survival rate, it’s more like 20 percent. Stage IV isn’t as serious as some other stage 4 cancers (where survival is around 2-5 percent) because squamous cell carcinoma of the head and neck rarely metastasizes beyond the neck, and when it does it is usually after treatment (if that treatment is chemo and radiation, but not surgery).

Being that Mr. Douglas has access to the best treatment in the world, he should have gone by Loma Linda Proton Therapy Center or one of the other 6 or 7 proton centers in the country for treatment rather than having standard radiation.

Protons don’t cause the damage that standard radiation causes, and there is a slight improvement in survival for most cancers because the protons can be delivered at a higher dose.

Even if Mr. Douglas’ treatment isn’t ultimately successful, proton therapy would have maintained a much better quality of life for him while he is still here on earth.

I wish Mr. Douglas the best, and I hope he beats the odds. But I do think what he said on TV gave the viewing public an inaccurate view of the disease he is facing.

September 5, 2010 at 10:39 am
(15) Carol says:

WE need more Tony s’ in the world. I am a two year survivor and I hated my first doctor that beat around the bush and was soft about the histology…blah blah….Then I went to moffitt cancer center and they laid it on the line. The stage, prognosis, histology and well, what I wanted chopped off, burned off, poisoned…..yep it was all up to me. They gave me the percentages and the quality of life after treatment and the rest was up to me. God bless Tony, and all the family and friends of the cancer patients.

September 5, 2010 at 12:28 pm
(16) randythedoc says:

Tony is right on. Thank you. Cancer patients will thank you too. I cannot tell you how many cancer patients are lied to by their oncologists, because everyone wants hope, and oncologists have trouble getting up in the morning if they dont provide hope. Guess what, if people really knew the numbers, they could make their own decisions. Feeding them BS like 80% survival for a Stage 4, when it is 30 on a good day is sad. So they can they can feel good, but then torture themselves with chemo that increases their survivial by 0-5 percent in many cases is criminal. If they know the numbers they can choose to have some quality time with their families and then die with dignity, rather than be tortured to death by treatments that dont work. I am on the forefront of medical research in oncology, and new treatments are on their way, but docs should give the facts, and should not sugarcoat them to make folks feel good. For most solid tumors like lung, pancreas, brain, liver, the death rates have not improved much is 30 years.

Real feeing good is spending time with your family, knowing the odds, and preparing for survival, but being real about living every day like it is the last. Hard but true.

September 5, 2010 at 8:47 pm
(17) Carol says:

Tony is absolutely correct concerning the mortality rate of Stage IV throat cancer. http://oralcancerfoundation.org
The “80%” figure is for Stage I or II tumors. Over 45% of people with Stage IV tumors will not survive longer than two years: and even that figure assumes the patient undergoes the most aggressive, recommended treatment available: chemo, radiation AND surgery. Sadly, surgery for Stage IV throat cancer is not only disfiguring but almost always includes the removal of the larynx, requiring the patient to learn esophageal speech or to use an electronic larynx.
Whether Mr. Douglas has opted out of this terrible surgery because of its after effects or because his doctors don’t think it would better his prognosis, of course, is an unknown.
So: no one would expect him to go on national television and tell people he’s dying. In his interview, he started to say his cancer hadn’t spread, but then back-pedaled and said he “was head and neck” and that therefore “expectations are good”. But Stage IV cancer by definition has metastasized and there are only so many places it could have spread to in the head and neck. I’m guessing Douglas had a lot of make-up on for his Letterman appearance and I think he still looked ill: as would anyone in his position.

Keeping a positive attitude may not save his life, but it’s vital to the quality of the time he has left. Every one’s response to a cancer diagnosis is different. Lots of people fight like hell against the incredible odds associated with some cancers. Gilda Radner and ovarian cancer and Patrick Swayze and pancreatic cancer. Like throat cancer, these two are usually not discovered until they cannot be treated effectively. Some people who have seen loved ones through such battles opt to make the most of the time they do have left instead of undergoing debilitating and ultimately useless treatments.

Whatever choices Mr. Douglas makes, all we can do is wish him well.

September 6, 2010 at 12:04 am
(18) Sam says:

I could never presume to speak for someone in Mr. Douglas’s situation however, the comment that TV audiences should not expect those with advanced cancers to be honest when interviewed was recently refuted by Christopher Hitchens’ courageous ownership of his diagnosis of esophageal cancer and almost assured shortened life span.

I agree the reluctance of many doctors to provide a realist appraisal of benefit vs harm offered by aggressive current state medical “treatments” for advanced cancers is often a disservice to patient, family, friends and fans.

I hope that Mr. Douglas and all those struggling to deal with life shortening illnesses success in finding the kind of support and care that will help them make the best possible decisions in pursuing optimal outcomes both in terms of extending and maintaining a reasonable quality of life.

September 6, 2010 at 12:14 am
(19) Roby Mitchell M.D. says:

What Tony and Carol say is all too true. The chances of Mr Douglas,or anyone for that matter, surviving tobacco/alcohol induced stage 4 oropharyngeal cancer is very low. You get the real picture if you look at 10 year rather than 5 year survival rates. His chances are further reduced by the administration of aggressive radiation and chemotherapy. Ionizing radiation,including mammograms and CT scans cause cancer and the effects are cumulative throughout your lifespan. Chemo works on a handful of cancers such as testicular and some leukemias. Unfortunately,for the common cancers,chemo fails miserably once these leave the primary site. Some doctors,Richard Linchitz MD in NY and Frank Shallenberger MD in Carson City offer low dose chemo with insulin potentiation therapy. This spares the immune system which is what actually has to effect the long-term cure. The YouTube “Run From the Cure” has the cure he should be investigating.

September 6, 2010 at 9:25 am
(20) Helen says:

All I know is the he looked very poorly on the Letterman show. Haunted eyes. Very frightened. Trying to make the best of things – I think he has an uphill battle.

September 6, 2010 at 7:49 pm
(21) freida bass says:

i certainly wish the best for mr. douglas.both of my parents had lymphoma,my sister had ovarian cancer,and now my 30 year old son is starting his 5th year of dealing with folicular
lymphoma.attitiude and positive thinking is important.my dad was given six months,lived six years,moms never reoccured,my son’s is supposed to be a slow growing type,but no treatment(including nueclear raDIOLOGY,BONE MARROW TRANSPLANTS,AND VARIOUS CHEMOS HAVE GIVEN US LONG THAN SIX MONTHS WITHOUT STARTING A NEW TREATMENT.he does however have a very positive attitude,as well as the people who surround him.anger and negitivity doe not help in the treatment they have to fo thru.

September 8, 2010 at 1:36 pm
(22) Darlene says:

Tony is correct..Don’t know too many cancers stage 4 with an 80% cure rate..and by now people should know chemo and radiation do not cure cancer and instead put you at risk for other cancers..Tony is saying what all doctors should be telling their patients but either can’t or won’t. Mainstream medicine has very little to offer stage 4 cancer patients.Do research if you don’t believe me.

September 8, 2010 at 2:44 pm
(23) George says:

Tony never said he was a physican. He said he “was taught in medical school” Nevertheless he doesn’t sound like a cool guy anyway.
This website is a downer by any stetch of the definition.

September 9, 2010 at 8:16 pm
(24) Rich says:

Stage IVa throat cancer survivor. Three years post-treatment and no evidence of disease. That says it all. My best to the Douglas family

September 9, 2010 at 10:15 pm
(25) Blake says:

As someone with Stage IV cancer, I only found this site because he claimed an 80% survival rate. Tony was right on, and as honest as my secondary oncologist, for whom I have the greatest respect. The problem here is the message to those who have a similar diagnoses: My Oncologist tells me that the 5yr rate is x, but this movie star claims it is y, whom do I believe? That can really be traumatic and cause folks to make very bad decisions.

Thank you Tony, and I hope that Michael has the same luck as Rich. NED (no evidence of disease) is my goal as well.

September 11, 2010 at 12:32 am
(26) annoyed says:

Nearly all of you are idiots (not your fault though, I guess). It amazes me how people think they know–it’s so easy talk, but so hard to research or verify, even for the supposed medical professionals among you, which is very disturbing. Commenter #24, Rich, is the sole voice of reason here. He is proof that Stage 4(a) oropharyngeal cancers can have a good chance of survival. So is the following article I found, which indicates stage 4 oropharyngeal cancer encompasses several stage subsets with differing prognoses–an article I was able to find (and I’m not even a medical professional) in my brief internet research (try it people before you are so quick to run your mouth to make such definitive statements; in this day and age there should be no excuse): http://www.ncbi.nlm.nih.gov/pubmed/10419040

September 11, 2010 at 11:48 am
(27) Sam says:

Anon … Idiots you say. As in “usually offensive : a person affected with extreme mental retardation?”

I would suggest you are a wee bit rude … make that very rude and not at all versed in how to “win friends and INFLUENCE people.”

If you want to educate or shift opinion I suggest you start your argument sans crude and derogatory generalizations.

But of course that was never your intension was it? It was rather to show your unwiped backside … which you did very effectively.

September 11, 2010 at 1:10 pm
(28) sherry irving says:

So sorry to hear about Michael Douglass throat cancer. I wish him the all the best. Every person should read the book Ingersoll’s Greatest Lectures. This book will set you free.

September 11, 2010 at 3:35 pm
(29) Christy Hamilton says:

Wishing the best for Michael Douglas!!! As a chronically ill patient, I must say that I am very, very thankful for my doctors at Duke and their straightforward way of giving me medical advice, statistics, and diagnoses. Sometimes it’s not what you want to hear, and I somehow expect that Michael Douglas also has gotten information that’s not too great, but he’s keeping HOPE and a positive attitude, and I think that’s wonderful. I was within 2 weeks of death at one point, according to my doctors, and I beat the odds.

Rich, I’m happy that you are also one of those people who has beaten the odds so far, but that doesn’t change the fact that you have come out on the “good” side of the statistics, just like I did, and that fact that the statistics of stage IV throat cancer still remain. Even if there were only a 1% chance of survival, there is still hope and there will be those who can stand up and say “I have survived it”. Unfortunately, it doesn’t change the fact that the other 99% didn’t.

I just say stay positive no matter what you are dealing with, and never give up hope.

September 11, 2010 at 9:11 pm
(30) annoyed says:

Ah yes, Sam, that would be ‘annoyed’, not ‘Anon’…as in the intention of my post was neither to show my backside (though if there is one thing at which I am effective, it’s that, and without even trying, natch, thank you very much), nor to shift opinions/educate (I should hardly expect as much, though I see you successfully researched the definition of the word idiot–my faith in humanity is restored), but simply to vent my annoyance at the types of comments I was encountering when hoping simply to read of people’s experiences with the disease…and to share a little info with any sympathetic individuals out there. You might do well to consider your own advice, though, if you were hoping to educate my apparently ignorant ass…er, unwiped backside (unless, of course, you were venting too, in which case, I hope you feel better)

September 12, 2010 at 1:04 pm
(31) Sam says:

Not worth the salt.

September 12, 2010 at 10:06 pm
(32) annoyed says:

worth it enough for you to comment again. cheers.

September 13, 2010 at 2:16 am
(33) Amanda says:

Annoyed, did you even read the page you referred people to? If you had you would have read that stage IV cancer of the oropharynx was indeed split in two new groups…for new favorable stage IV and new unfavorable stage IV. Patients with the new favorable stage IV have a 5-year survival rate of 30.4%, and those with the new unfavorable stage IV had a survival rate of 0%. Now to me only having a 30% survival rate is not a good chance of survival. Why should doctors sugarcoat a diagnosis/prognosis? That doesn’t do anyone any good. Otherwise how do you know what you’re truly up against? Unless you have unlimited funds you have limited medical options. Most people just listen to what their doctors say and some people will perhaps get a second opinion.
No matter what health problem you have, you just need to keep hoping and praying for the best.

September 13, 2010 at 3:45 pm
(34) annoyed says:

Hi Amanda, I did read the abstract….the authors themselves described the favorable stage as having “relatively good results”. Approximately one in three patients is alive after five years. We don’t know what that ratio is in the nearer term; it is likely higher. Michael Douglas has been given an 80% chance of survival (but we do not know how long term this is, just as we do not know if his doctors sugarcoated his prognosis for him or whether Michael Douglas is sugarcoating it for us or himself). I also read that the article was authored more than a decade ago, in 1999. Treatments may well have progressed since then, allowing for even more favorable prognoses.

September 14, 2010 at 12:42 am
(35) Dale says:

I do think staging is important for medical professions treating someone–which addressing the biological aspects of the cancer. However, there is still the psychological (thoughts, feelings, behaviours); the social aspects (support and resources) and spiritual. The attitude Michael Douglas and millions of other people living with the disease deserve all 4 aspects are addressed, nurtured and encouraged.
d

September 14, 2010 at 10:17 am
(36) Gina says:

Fair discussion, with the usual konwitalls and realityphobes. Interestingly no one seems willing to name Mr Douglas’s specialists, who surely deserve their place in the sun. If for no other reason than to help people beat a path away from their doors.

Nor is there any mention made of the length of time it took to even get a correct diagnosis. And this for a man who could presumably afford his own MRI station.

Class IV is not an immediate death sentence; after all no one gets out of here alive, but it is a very stern warning as to the quality of life expectations over the coming 5 years.

We all join in wishing Mr Douglas and his family as much happiness and quality time together as they find. That’s it really.

September 14, 2010 at 10:58 am
(37) Louise says:

You read the abstract?!?

I suggest in the future if you are going to refer to a research article it might be a good idea to read the whole thing first. The distress going on at the moment about Diclofenac and stroke is the result of people only reading ‘abstracts’ and not looking at the research itself.

Christy Hamilton has the right idea. You have the ability to educate yourself, to research data, to figure out statistics and choose your treatment options. But in the end it is up to you to fight, and it is up to you how you approach your treatment.

True patient consent and autonomy can only be achieved if the patient understands what they have, their treatment options and what the treatment can realistically achieve.

I don’t believe in God, but I do believe in faith. So whatever you are suffering through just have faith that whatever decision you have made is the right one for you.

I wish you all the best; especially Rich, Blake and all the other people out there still fighting.

September 14, 2010 at 11:34 am
(38) Jay says:

In some of these comments you can see a wee but telling slice of the sad history of humanity. Rather than discuss the very serious topic at hand with the intention of offering knowledge and support to people who are suffering and looking for answers, some folks choose to worsen the situation with their insensitiveness and towering egos. Cancer is painful enough without commentators, under the guise of being helpful, making it worse with their narcissistic and childish one-upmanship which just wastes everyone’s time and energy and obstructs the purpose of the discussion. Please grow up and leave this ridiculous acid-tongued badinage behind you in kindergarten where it belongs. If you can’t be useful as a part of this life and death discussion, just say nothing at all or go to some celebrity website to vent your misdirected anger where such displays are welcomed and encouraged.

September 15, 2010 at 12:03 pm
(39) annoyed says:

Sigh. Louise, if you click on the link, you see that the abstract is all there is to read. That’s part of my point. We don’t have all the information to make definitive statements such as that stage 4 is a death sentence. Researching even a little, shows us this. If you find a way to readily and easily access the full article, let me know.

September 16, 2010 at 9:58 pm
(40) KKSmith says:

My husband had a T4 tumor (larger than 4cm) attached to his tonsil and the back of his throat. It was removed surgically at USC last February along with around 20 lymph nodes. The lymph nodes were determined to be cancer-free, so his survival rate estimate is 80%. I think Annoyed is correct, a patient can get a Stage 4 diagnosis based on just the size of the tumor. It is our understanding that if you choose surgery as a treatment option, then chemo and radiation are still available to you if the cancer recurs. We’ve been wondering why Michael Douglas didn’t choose that option….My heart goes out to him and his wife! This is soooo scary. And…. my poor husband had been complaining to his doctor for TWO years about his persistent sore throat before he finally sent him to an ENT who said in the first five minutes “No wonder you have a sore throat, you have a tumor the size of a golf-ball on your left tonsil.”

September 19, 2010 at 11:52 am
(41) Joseph Gutknecht says:

I’ve read all the comments, now here’s my story as a survivor of stage 2 squamous cell at the base of the tongue. It was simple, I went to Sloan Kettering, saw a specialist, he diagnosed me in 5 minutes and gave me two options; a mandiblectomy followed by a mild dose of radiation or a left neck dissection,removing 94 lymph nodes, including my jugular vein,which contained 23 nodes; followed by a 40 days of heavey radiation.(1750 rads 5 days per week for 8 weeks).I chose the later, the first option looked too invasive. That was in 1999, 11 years later there is no signs of cancer…there are some residuals however…drymouth, loss of taste, swallowing extremely difficult,slurred speech,weight loss; there is no nice way to present stage 4 of any thing and I feel Mr. Douglas’ presentation was either very Cavalier or very misinformed. P.S. for my type of cancer, chemo was not prescribed because it would not be responsive..

September 19, 2010 at 8:02 pm
(42) Brenda Darbyshire says:

Stage 4 cancer of the breast or throat is not necessarily a death sentence. My husband had tonsil cancer in lymph nodes. Wonder DRS and is doing fine after 1 year. My mother -in-law had breast cancer in lymph nodes at age 75. She survived 15 years with no cancer ever returning and died of kidney problems. Being healthy, having never smoked, all these play parts to getting well. My husband has never smoked, drank chewed, dipped or salty foods and went to dentist every 3 months. So throat cancer never occurred to me. But one can always pray and try to do what you can to stay healthy.

September 21, 2010 at 10:09 am
(43) Jennifer says:

I think the real issue here isn’t survival rates, but quality of that survival…any cancer tx is grueling and taxing–but the recovery and surgery for this particular type that Mr Douglas has sounds even more harrowing….most of us think we’d be happy just to be alive, but in reality-we never really think about what kind of life that might be–my dad died 18 months ago of Dilated Cardiomyopathy—he in good health was active and vital, funny and adventurous, hopeful and forward thinking–the last years (yes, years) of his life were the complete opposite of all of those–exhausted, depressed, suffering (usually in silence), frustrated and angry-missing his old life and wanting to die–hard for us to watch, I can only imagine what is was like to “live” like that…so far be it for any of us to guess whether or not Mr Douglas’ physicians, publicists or even himself are all talking “bulls**t”—when it comes down to it it’s none of our business—be hopeful that his choosing to share any of it may help others and pray for him and the others to have peaceful, pain free days of quality with his family and friends and hope for the best outcome possible, whatever that may be—that should be a wish we all have for each day, sick or not…don’t take any of it for granted…

September 21, 2010 at 10:20 pm
(44) kevin morris says:

There is one factor that everyone forgets about.
and that is the mighty power of Jesus Christ.
Mr. Douglas, is in very good hands.
sleep well tonight micheal, for your riding on the wings
of the true 4 star General

September 23, 2010 at 8:53 am
(45) :) says:

Hello, I am a medical student graduating at the end of next year and my Dad has stage IV oropharyngeal cancer. He has 8 lymph nodes involved on both sides of his neck along with local invasion of 65% of his tongue.

At the end of the day, this forum is not only for Michael Douglas, it is for people just like me, looking for support and others story’s. It is for people to band together and take or leave what helps them.

In terms of staging, many believe any stage IV cancer means you have distant metastasis. This is not the case in Throat cancer, there are 3 types of stage IV, see this website for a good explaination:

http://www.cancer.gov/cancertopics/pdq/treatment/oropharyngeal/Patient/page2

Prognosis is so very difficult to determine, emedicine quotes one percentage (being 27% for advanced head and neck cancers) and others avoid quoting at all. This is however quite far from 80%, but what is so ridiculously important for anyone fighting a disease is what mind-frame they are in. If they are inudated with negativity as well as understanding that they are fighting to be one of 27 out of 100 is near impossible to maintain fighting. No false hope, and no negative (I know those aren’t the words I want to say but you get the point).

What is also important is the cause of the squamous cell carcinoma, is it from smoking, alcohol or in some like my dads HPV. Note, HPV has a bette outcome.

My mum and dad divorced when I was 4, he is not in a relationship, he has had friends fall away, and is left with 2 good friends which he sees 1-2 times a fortnight if that. My brother is great but struggles understandably, he is 23. I live about an 1 and 1/2 hrs away.

September 23, 2010 at 8:53 am
(46) :) says:

My dad was initally given the option of chemo and radio which he would need to get teeth pulled, and get a peg almost definitely. Long term he may be left with (most likely due to the size of the tongue muscle taken up now) speech impediment/pretty much no articulatable speech, and no swallowing. That sucks for anyone. He chose to go down an alternative route. We have been researching diets and therapys for the past 6months. I have helped with these, set out his diet, planned his tablets, ordered his tablets, initiate his infusions meaning I need to see him every 3 days. I am on full time rotations at hospital, I have a massive exam in 7 wks which is our block exam which has to be passed or you repeat the yr (not a financial option, have used all my fee help). I turn 21 in 2 days (its a fast tracked medical degree, 3 sems per yr for 4.6yrs, started straight out of high school at 17). Some days I feel overwhelmed, and I guess this is why I am using this forum to vent, as I feel like I don’t burden anyone on this. My apologies.

I digress, :) , it is up to my dad what he does. He did not want to do chemo radio, so we find something he does believe in. He has to believe. He has to believe. And he does believe, and that is why I would do anything for him. Not to mention the abundant love that I send and feel for him. This love needs to be sent to everyone you love and not just because one day they get cancer, and oh shit one day you might not be able to remember where the wrinkles on the back of their hands were. Death is not the worst thing that can happen here, death of life before death itself is. I will sit next to him forever and hold the truth of touch in our grasp to let him know and feel the realness of love. He will feel more in that moment than many do in decades of life. I hope you can all experience this at some point, and loose the judgement and “know all” and find the autonomy and acceptance.

Thank you for your time.

September 23, 2010 at 8:57 am
(47) :) says:

:) I hope that wasn’t too much of a ramble but it helps me emensly. I should probably write in a diary xo

September 23, 2010 at 3:11 pm
(48) SharonU says:

Dear :) ,

Your commentary on your situation was touching and as real as one can be. We found out that my father – in – law has stage IV and the prognosis is ‘moderate.’ I don’t know what that means. He is an alcoholic and smokes that is for sure. Today he is getting a feeding tube put it. He has not given all of the information to his children as is his usual nature.

We of course are nervous and hopeful. I guess what I am saying is, there is always room for hope. I don’t really care at this time what the %’s mean as that really at the end of the day is up to our maker.

I am grateful for all of the Dr.’s that were good enough to provide all the necessary information to my husband’s sister so that they can all make plans about dad’s care and well being. These are the huge and painful decisions made by real people who will be left behind. I pray that their strength returns to them as they walk this horrid path.

May you all benefit from hope.

September 23, 2010 at 6:49 pm
(49) JAA says:

OK, maybe someone can explain my brother-in-laws info. He has stage IVa, T2 M0, 60%. And of course like an idiot–still smokes and drinks. I lost my husband to colon cancer when diagnosed he was at stage 3, and within 1.5 years I lost him. I understand the difference between the 2 cancers but not sure with my brother-in-laws diagnose and him still smoking and drinking–exactly how long he has– I expect him to die with his attitude… just need to prepare the rest of the family as my sister has her head in the sand with it. thanks

September 23, 2010 at 7:25 pm
(50) :) says:

Jaa,

It really depends on what treatments he is getting and his mind-frame in tackelling those. Dose he want to live? Quality of life is why we are all here, and I guess we can’t judge if people aren’t doing what we think is right. I needs to live how he wants. I trust he has the intelligence to understand what smoking and drinking will do to him. Query, is he using this as a coping mechanism? Does he need help and support with where his head is at?

My dad was initally given the option of chemo and radio which he would need to get teeth pulled, and get a peg almost definitely. Long term he may be left with (most likely due to the size of the tongue muscle taken up now) speech impediment/pretty much no articulatable speech, and no swallowing. That sucks for anyone. He chose to go down an alternative route. Many people have judged him poorly and un-educatedly for this. We have been researching diets and therapys for the past 6months. I have helped with these, set out his diet, planned his tablets, ordered his tablets, initiate his infusions meaning I need to see him every 3 days. I am on full time rotations at hospital, I have a massive exam in 7 wks which is our block exam which has to be passed or you repeat the yr (not a financial option, have used all my fee help). I turn 21 in 2 days (its a fast tracked medical degree, 3 sems per yr for 4.6yrs, started straight out of high school at 17). Some days I feel overwhelmed, and I guess this is why I am using this forum to vent, as I feel like I don’t burden anyone on this. My apologies.

September 24, 2010 at 4:33 am
(51) vicki says:

My father had stage 4 throat cancer and was told they could keep him alive for 5 years,,but the life was full of pain and treatments,,and the cancer spread very fast to his head and spine,,my dad lasted 1 year and im thankful its over he is no longer in pain. And he was told that stage 4 cancer only has a 10 to 15% survivale rate

September 24, 2010 at 12:33 pm
(52) Lynn says:

My brother was just diagnosed with Stage IV throat cancer, which has begun to spread to the lungs. The cancer in his throat began under the tongue but has spread into the lymph nodes on both sides so extensively that there are large swellings. This places him in the Stage IV Unfavorable category in the Yokoshima et al paper, with 0 chance of survival at 5 years. Our mother was a nurse who counseled not undertaking hopeless rounds of chemo/radiation. However, my brother’s oncologist keeps bringing this up and telling him that “there could be some response and shrinking of the tumor.” However, he is not recommending limited palliative chemo, he is talking about the whole frontal assault. Any thoughts? I am basically terrified of seeing my brother go through great misery that will ruin what is left of his life. At the moment he is pretty cheerful in the hospital with a dilaudid pump.

September 24, 2010 at 3:16 pm
(53) Nadine says:

I am getting sick and tired of reading all the posts that call upon prayer to “cure” or “prevent” cancer. As far as I know, Jesus Christ cannot cure cancer. If he can, then why bother to go through surgery, radiation, chemo, JUST PRAY!!! I understand it can make one “feel” better, but come on, let’s get real here.

September 25, 2010 at 9:56 am
(54) pepper says:

While this blog shouldn’t be about “Tony”, who is probably an armchair expert on “everything”…. and “nothing”, what was Michael supposed to say on Letterman? “Hi Dave, I’ll be dead soon.”??? What choice does anyone have but to be hopeful in a terrible situation like this? The man has his pride and two young kids…

September 27, 2010 at 10:57 am
(55) K McGrew says:

If you google “tonsil cancer” for research make sure you type in “2010″. The statistics for survival have changed greatly in the last few years due to better technology and treatments. There are quite a few stage IV survivors out there in the support group forums with no sign of illness after treatment. It is very important to think in a positive way throughout treatment as it does affect the body’s production of endorphins and healing. It is also important to support the immune system and eat many vegetables and (especially juicing carrots), stay away from sugar which the cancer feeds on, and keep the mouth and throat area alkaline as possible. (There is a maple sugar and baking soda remedy you can find online that helps with this, can’t hurt) My prayers and love to all who are dealing with this.

September 27, 2010 at 4:35 pm
(56) Chris says:

One of the worrying things about throat cancer is how long it takes some doctors to notice it. Michael Douglas made a number of trips to the doctor before it was finally diagnosed, and some of the other posters also know of cases where it took numerous visits before the doctors finally realzed it was cancer. I also knew a man who had throat cancer. He was complaining of a sore throat and an earache, and went to the doctor a number of times. The doctor gave him cold medicine. It wasn’t until he couldn’t swallow any more when the doctors realized how serious it was, and the man passed away within a couple of months.

As the safety and effectiveness of chemotherapy and radiation are questionable, more attention does need to be given to alternative treatments for cancer to see if they’re any better. I’ve heard that the herb graviola is supposed to be effective at killing cancer cells, but as it’s an herb, it can’t be patented, and therefore, the drug companies won’t be rushing to share the news. There are also supplements and dietary habits which supposedly help prevent cancer.

September 27, 2010 at 4:54 pm
(57) Chris says:

I’ve also found a website which discusses alternative treatments for cancer at http://cancertruth.org.

September 28, 2010 at 12:49 pm
(58) Sam says:

The above link is spam and I suggest it be removed.

September 29, 2010 at 6:21 am
(59) Billy Vandory says:

Stage 4, what? The diagnosis is incomplete. For throat cancer, and most cancers, staging is determined using TNM, three variables:

T = tumor
N = nodal involvement
M = metastasis to other organs

The way he describes it, sounds like T4N0M0, but unlikely, since stage 4 usually involves metastasis. So either he isn’t telling or was not told.

October 1, 2010 at 4:12 am
(60) Brendon says:

I have TALL lymphoma. I was diagnosed stage IV aged 33 and was told by my physician that I have a 45% chance of survival over five years. I was also told that if you are 55y.o. or over upon diagnosis (stage IV) that you have a 20% chance of survival “long term”. This means that Mr Douglas is too old to expect to live beyond two years. APC vaccinations and Dendrimers are one area where an enfranchised patient such as Michael may have options for treatment unlike less endowed sufferers such as myself.

October 3, 2010 at 11:30 pm
(61) crisdally says:

cancer is never good in any way. it is rampant in my family. time span was 2 months to almost 15 yrs. the NON information we got made it all the more frustrating and hopeless. you CAN deal better with the harsh truth and hell no it isnt pretty. i just lost my mother 4 weeks ago but was lead to believe we had time and even to become a candidate for physical therapy. i would have rather been told to enlist hospice than put her through a center or home health service as at least she would have had no pain.

my uncle was diagnoised in the early 1970*s with throat cancer and had his voice box removed. he will be 90 yrs old this month and still uses his microphone placed to the hole in his neck (covered by scarves) and talks up a storm. there isnt anything good about cancer. prayers and research are how to deal with it.

October 5, 2010 at 12:11 am
(62) anon says:

Cancer stories? well I can tell you it doesn’t matter what the dr. says or how you are told. Your thoughts are first disbelief… second… what am I suppose to do now? third… I could die! in that order. Its is the most terrifying feeling you will ever have in your life. Plus even when you are able to talk about it, in a “Oh I will be ok’ voice in your head and out your mouth … you’re still thinking “oh my god what if” and you are always afraid to say it…

October 5, 2010 at 2:26 pm
(63) Patti says:

All I’ve read & people I talked 2 when I was going thru chemo 11 years ago. My understanding 4 treatment of head & neck cancers is they’re very painful & can be disfiguring. If the surgery’s from the outside, like Roger Ebert’s jaw cancer, he’s considerably disfigured. Lucky 4 him, his wife, friends & family, he’s a very spirited & inspiring man who hasn’t let it stop him at all.
If Mr. Douglas is lucky enough 4 the treatments 2 work w/o surgery, it may not change his looks but, his voice will be affected. Stage 4 usually means it has spread 2 lymph nodes and if a node bursts, cancer can go anywhere or everywhere. I was lucky, stage 2 breast cancer & out of 11 nodes, 0 involved. In 1987 my mom had colon cancer docs found while removing her gall bladder. After the Monday colon surgery, the docs came out & told my dad, my aunt & I, because of the visible lymph nodes, we’d be lucky if she lived 6 months. My aunt & I lived 150 miles away & we cried all the way home. Mom had no idea the prognosis they had given us. That whole week I had been grieving my mother. On Friday, the doc told her there was no node involvement. She could live a long life. She didn’t even have to get chemo or radiation! On that day, mom called and told me the great news but, I didn’t believe her. I thought she was ‘protecting’ me as she had B 4. So the doc called me.
What I’m taking so long to say is there is always hope and each case is different—don’t count Mr. Douglas out. He’s much to go thru including physical pain, emotions of all kinds, fighting 2 stay positive when u feel like crap, I can’t say enough re: the pain and sickness from chemo. People don’t know chemo is putting POISON in your body. Pray for the family and send them positive thoughts. Miracles do happen and it seems one is needed here.
2 the family—I’m praying 4 u and sending positivity your way. I also want 2 express the joy your movies give me. I know I’m 1 of millions. God bless you all.

October 6, 2010 at 12:05 pm
(64) random says:

I just found this article this morning and read all the comments. I’m not here to support or criticize anybody else and what they have said, as generally people had interesting things to say, regardless.

My situation is that I just discovered a few days ago that my uncle has been diagnosed with Stage IV throat cancer – specifically, squamous cell carcinoma. Although I wasn’t told the specific location, I would have to guess it’s in the larynx, as he is in his 40′s and a life-long heavy drinker and smoker. Apparently he’s to receive radiation and chemo before they can consider surgery, in an attempt to avoid extensive reconstructive surgery.

If I had to guess, my uncle’s odds of even 5-year survival are 20% at best, but probably lower than that. Like my uncle, Michael Douglas was a long-time smoker; his saying 80% is a bunch of BS, but, hey, he’s allowed it as it’s his time left to spend.

The thing is, a lot seems to depend not only on the stage, but the risk factors (smoking/drinking, HPV), and location. All of which seem to dramatically alter one’s prognosis. So I’m not sure anybody can sit here and say “Well, it’s definitely this or this”.

But considering the factors we do know, it doesn’t take much to see that for Michael Douglas, like my uncle, the prognosis isn’t good at all.

October 7, 2010 at 2:28 pm
(65) ann says:

My mother had lung cancer, stg 4 and lasted three months from diagnosis. I remember very clearly the doctor talking to her very honestly about her prognosis. He gave her an 80% chance of surviving 1 year with treatment and would be dead in one month without any. The most that she could hope for was 2 years. The first month she visited with family and friends, the last 2 were horrific, but it was her choice to fight.
I don’t think that Michael Douglas said that he had an 80% chance of surviving more than 5 years. I saw a chart somewhere which covers 6 months – 5 years and the %’s. I do wish him well.

October 11, 2010 at 10:25 am
(66) es says:

To Michael Doughlas, cancer survivors and families…one day at a time…thoughts and prayers

October 12, 2010 at 10:27 pm
(67) cancertookmydad says:

Cancer took my dad….

When finally diagnosed, all of our family pulled together and were certain that with enough support and pomegranate juice, Dad would pull through, but he didn’t.

There was only one doctor that gave us the truth – that my dad wasn’t going to be around much longer.
The oncologist gave us ridiculous false hopes – “we’re going to attack the cancer here, then there” – yeah yeah……after three rounds of chemo my Dad was dead.

Hindsight, I am only thankful that my Dad went quick – it was less than two months from diagnosis to death; it wasn’t pretty, but he had family by his side until he drew his last breath.

I personally can’t say whether it was better to have false hope or not, but why not die believing that you were going to beat it rather than it beat you – I don’t know.

God Bless anyone who is dealing with cancer or knows someone with cancer – it’s a horrible disease.
Pray that you have the strength to endure and for anxiety and fear to be lifted…..

October 14, 2010 at 2:04 am
(68) Jenny says:

What shall I say Ed? Please let me know.

In memory, I hear him saying, I dont’ want to die. Why must I go now? I want to be here for my children and grandchildren. LORD, if there is anything you could do to stop this, but not my will, but yours. These are the precious words displayed in his humble eyes.

Afterwards, he began to really live, and I mean really live! He shared smiles with just about anyone. He joked with complete strangers. He enjoyed the simple minded and children. His disfigured smile was awesome. His music was wonderful. His love was overflowing. That’s the man I fell in love with and that’s the man that died in our home.

October 14, 2010 at 2:54 pm
(69) Lauretta says:

The truth is the truth and you can sugar coat it and who does it help. I lost both of my parents to cancer when I was 25. They died 2 1/2 months apart. My mom’s breast cancer and secondary was every body part you can think of. My dad lung then the “spider” moves and it was skin, bones and lastly brain. So Tony is just saying it as it is Michelle. Beside kind bedside manners didn’t help me in the least when I was given both of my young (50′s) parent’s prognosis. It is what it is. And for the record as sad as it is, I believe Tony’s diagnosis is correct. As a lay person, I thought exactly the same thing and as a human being I am very saddened for Michael and his entire family.

October 14, 2010 at 11:23 pm
(70) Janet McMahan says:

My son was diagnosed with a very rare Cancer for his age of 24. I found Arsenic in our water. I also discovered that 4 small children nearby were diagnosed with Cancer within 9 months 10 days. We live in a small town in GA. Arsenic was “sucked up” during drought of 2006-2008. We are hearing of NEW CANCERS everyday in my husband’s Medical Office. We heard of 3 NEW Cancers on Monday and a possible 4th… Extension agents are testing the “wrong water” for Arsenic. Spigot water can be negligible for Arsenic, even when there are heavy amounts in sediment in well tanks, water heaters, etc. Finally, the head of Poison Control asked Director of State Health Dept to investigate our Cancer Clusters…. please read my son’s website and tell Michael about this post! May God Bless Michael and his family!!!www.caringbridge.org/visit/benmcmahan

October 15, 2010 at 4:44 pm
(71) Jane says:

People (especially we Americans) are very afraid of death…that’s why Tony rattled a few cages. Facts are facts. Bullshit is high school. Grow up and face the fact of your mortality, people.

October 16, 2010 at 11:43 pm
(72) YahisLove says:

There is no possible way that a Stage IV cancer of any kind could be curable, unless almighty God intereferes. Stage IV means that there is definitely metasteses to lymph nodes and other organs. I have been an Oncology RN for years and the chances of a person having stage IV and fully recovering is less than 0.9%. We should all be optomistic though and pray for everyone who is dealing with cancer and pray to God so we and our families are free from this horrible pandemic disease.

October 19, 2010 at 3:34 pm
(73) rm says:

my father is recently diagnosed with throat cancer and the docs say it is locally advanced, they havent mentioned very clearly of what stage he is in, however it doesnt look like it has spread to any other place of his body other than his throat.

this is what the report read,

locally advanced ca hypopharynx, grwoth involves following structures,

superiorly the vallecula
inferiorly the cervical eusophagus
medially the laterla pharygeal
laterally the membraneous and cartillageous walls of pyriform fossa

the doctor treating my father said he may live any where between 6-12months he is under chemo now 3 weeks over and another 3 to follow. after that they will do an analysis and give radiotherapy based on analysis outcome.

i got this news last week though my family knew it a month back they didnt say it coz i recently had a baby. I am devastated, emotionally overwhelmed, my father is my guru and everything to me. However am realising the facts of this disease. I am sure with these few lines someone cannot tell 100% how bad or good his stage is in. But any experience and knowledge would help.

Folks, thank you all for sharing, I dont hold any hard feelings against anyone for sharing information, it is what it is and we have to deal with it. But if there is a chance to give hope to people like us, dont fail to do that.

god is great!!!

looking forward for comments.

October 20, 2010 at 4:41 pm
(74) Marilyn says:

I think Tony is spot on, and his bedside manner seems fine w/ me. I would rather have a passionate dr. than a publicist that did not have the right facts or is facading everthing…go Dr. Tony.

October 21, 2010 at 10:03 pm
(75) Dennis says:

The other elephant in the room. Smoking. my brother died recently from this, he was a life long smoker.
Brother got the news in March, died in Sept. with so-called treatment of surgery, chemo, and radiation. What torture.
And what about diet. Read the China Study.

October 22, 2010 at 5:59 am
(76) Oscar says:

For those of you who are looking for some hope, you should go to the following link:

http://www.burzynskiclinic.com/

There was a documentary made (recently and making the rounds) about this doctor (Dr. Burzynski is an MD and PhD) and the very great success rates he has had with very advanced cancers.

My mother died from esophageal cancer, (heavy smoker and drinker), but she was 84 years of age, which is a good life span.

I hope Mr. Douglas and/or a family member reads this comment, along with those of you who are suffering, or have a loved one, with cancer.

At this point, what do you have to lose? The MD and medical types who have commented, I believe, are correct that the odds are not good with any stage III or IV cancers.

Best of Luck to all of you and May you find Peace in God

October 24, 2010 at 5:52 am
(77) Lisa says:

I have a very close friend who is a Stage IV cancer survivor who had a less than 20% chance of survival! She had a deadly brain tumor and at Stage IV her lymph nodes were luckily not affected. She IS a survivor!

October 25, 2010 at 4:42 pm
(78) anita says:

My husband had stage 4 squamous cell carcinoma of the throat. He was treated with chemotharapy and radiotherapy. This was three and a half years ago and no signs of reoccurence.

October 31, 2010 at 9:09 pm
(79) Patrick says:

I have been diagnosed with Stage IV SCC of the tonsil. Have had two surgeries and radiation. The doctor at Sloan-Kettering told me my chances were 80-20. Don’t believe the BS some of these folks are touting. The advances and where you go make a huge difference. These folks do the research, or are involved in the research. The doctors don’t lie to you.

November 5, 2010 at 10:54 pm
(80) jenny says:

Stage 4 Throat Cancer Survival Rate
Throat cancer survival rate depends on a number of factors, including the stage of the disease, age and general health of the patient, as well as other factors like will power and determination of the patient, etc. As previously mentioned, stage 4 throat cancer prognosis is relatively unfavorable and the survival rate for carcinoma in situ is nearly 98%. The five year survival rate for stage 1 throat cancer is 90% which means about 90% of patients with throat cancer stage 1 will survive for five years or more. The survival rate for stage 2 throat cancer is 75% while for stage 3 throat cancer, it is about 60%. Stage 4 throat cancer survival rate is the minimum one, that is only 30%. This means only 30% of people with stage 4 throat cancer will survive for 5 years. Remember, statistical figures should be considered as guidelines only. These figures should not be used to predict the life expectancy of a patient.

November 13, 2010 at 6:54 pm
(81) Gutted says:

My mum has just been told she has cancer! She was refered to a head, neck and throat specialist with an enlarged lymph gland on the right side of her neck, after having a needle biopsy and MRI she was told the news. She was admitted to hospital the following day so that they could have a look to find the source of the disease> They removed her right tonsil and told us that they saw no other lumps during the procedure and that they think it started in the tonsil.
Please, if anyone can give me some advice then I would be most grateful. Does this sound like stage iv?
Mum has a CT scan tomorrow to see if it has spread anywhere else.
All I can say is she is my world, my best friend and i feel like my world has ended already ):

November 15, 2010 at 2:46 am
(82) juli says:

I agree with Tony that most of us medically proffessionals, know that stage IV cancer means that it’s all over. :-) But, I beleive in the power of prayer. I think prayer could make M.Douglas the exception.

November 15, 2010 at 2:56 am
(83) juli says:

I think what Mr. Douglas meant was that 80% of patients with stage 4 cancer of any kind don’t make it. I”m not callous. My wonderful late husb had stage IV bladder cancer, and it spread to his bones and other areas, adn he did not make it :- (

November 15, 2010 at 5:49 pm
(84) Michael Browne says:

OK, you can interpret all of the passion and frustration over this terrible disease. After reading most of these entries and having stage 4 squamous cell neck cancer I have some proprietary interest in this subject. This is a rational approach to assist all with this difficult situation. Survival rates indicate that there is a rate of survival. The number of nodes involved, treatment choices such as chemical and combination chemical radiation can improve survival rates because on the chemical level the cancer is being treated on an entire body treatment plan. The most cutting edge treatments not only focus on the region of origin but also focus on destroying possible future spread to other areas. You can radiate the neck to destroy cancer in the area of origin but chemo treatment with 5fu or Cislplatin may yield better results. Yes the treatments are tough, but they are doable. It is also important to know that when staging head and neck that it is a bit different as far as outcomes. Don’t let the “so called” medical professional Tony deter you from fighting to stay alive. He wasn’t being candid, he has no expertise in the area he was commenting on. Using Tony’s logic It would be like me saying all people with the name Tony are stupid.

November 19, 2010 at 4:05 am
(85) Samy says:

Cancer can be beaten at any stage

November 28, 2010 at 9:24 am
(86) Healing The Gerson Way says:

Chemo and Radiation will not heal Michael Douglas. I suggest that he tries an alternative natural solution which will include the intake of organic juices, supplements to build and strenghten his immune system while detoing. Mr. Douglas should consider checking out the Gerson therapy.

November 29, 2010 at 8:40 pm
(87) Arthur Laszlo, MD says:

I read most of the comments with great interest and some dismay. Yes, Michael Douglas has a serious cancer by all standards. Stage IV is ominous and very likely unrelenting in its ultimate outcome. Frankly, I wouldn’t be saying this if there weren’t already such voluminous commentary in the various news media (as well as obviously the Internet). What troubles me is the extraordinary insensitivity of everyone publishing (in one form or another)all this negativity. Cancer is awful regardless of the stage. Even when it is “curable”, the afflicted individual lives in some degree of consternation because there is always that subliminal fear of recurrence, true or not. We should not forget that Michael Douglas (or Patrick Swayze, for that matter) is ALSO privy to all the “news” about his health. Why are we not respectful of his feelings and that of his family, particularly his young children! And why dash his hopes with dire prognoses? As a physician and fellow human being, I want him to do as well as is possible, given the diagnosis with which he has been presented. Never diminish one’s hope or optimism! Remember, it’s not over ’til it’s over! AML

December 2, 2010 at 10:46 am
(88) Jack says:

Bedside manners? You guys are rediculous. This is not a bedside. It’s a public forum for factual discussion. Should the rest of the world be misinformed about Stage IV cancer? I’m sure Michael Douglass isn’t reading this forum anyway as he has already received the prognosis directly from his doctor.

December 9, 2010 at 1:27 am
(89) BAGit says:

From what I see of throat cancer so far with a friend and a relative it’s nasty. Radiation treatments burn your mouth, throat, neck. You have blisters inside your throat and tongue. Then blisters that burst making raw sores inside. The Dr. gives them big time pain meds. At first cold foods and drinks work. Then you go to warm foods and drinks which is short lived comfort. Finally Your barely able to drink any water. You lose lots of weight. At first you have radiation treatments and go home in short time. But time goes by and you have longer timed radiation treatments. Now it’s radiation treatments and intervenus fluids to keep patient alive. Now it’s working into a feeding tube time after weeks of radiation and a 50 lbs of weight loss. This just better work. After all my friend has a garden to plant next summer.

December 28, 2010 at 10:42 am
(90) Doug says:

Part I of II

Stage IV cancer survival rates as meantioned in the article are completely inaccurate. The first commenter’s clarification on 1-in-10 5 year survival is a welcome clarification of the facts. The other comments about ‘bed-side manner” being inappropriate are also very far off the mark. In all probability Michael Douglas will not be with us much longer. These are the facts; deal with them. If he, or anyone else with Stage IV cancer, lives longer than what is expected for most patients then that is wonderful, but patients and their loved ones need to hear and know the truth so they can act accordingly and begin the long difficult process of accepting and dealing with death.

December 28, 2010 at 10:43 am
(91) Doug says:

Doctors are not social workers, nor are they supposed to be your friend or conifidant. They are professionals who must deal with difficult and painful realities everyday. When faced in life with insurmountable and life altering realities there absolutely needs to be professionals such as doctors that deal solely in the unmitigated uncompromised truth. Some things should not and cannot be sugar coated. Dealing with terminal patients and their disease is one of them. This world is over flowing with weak minded people who spend most of their life in suspended animation avoiding at all cost the difficult and painful realities that are around. The entire entertainment industry for example is founded firmly on the need to keep the mass majority in some kind of dumbed down easy to swallow pseudo-reality that only servers to makes people mindless sedated sheep. Wake up people, life is about living and ultimately it is indeed about death so you better get your head out of the sand and realize that when a doctor says you have cancer that it means something horrifying and terrible. If you want it sugar coated then spend your final days in front of the boob tube watching general hospital or something. As for me I want doctors that tell me the truth, the whole truth and nothing but the truth.

December 28, 2010 at 8:18 pm
(92) John says:

I do not think Tony is in the medical field but he does make a point. Bed-side manners are for those on the bed side not in the bed. People in the room want reassurance and kindness and it’s understandable. For the person in the bed it is right that they know the truth. If they have stage IV cancer and there is no hope to be cured then he or she needs to know that. As for me, if this applies to anyone else, fine, I’m a person that looks at the worst case senerio. Simple reason, anything else has got to be better. It might be a smart ass remark but it’s very true. Those that have cancer, I hope life gives you a second chance. Living never gets old.

January 1, 2011 at 2:28 pm
(93) Renee says:

Hi, So i havent cried about this for a while but had the blessing of reading Tony’s comment only to be reminded of the bleek outlook on my future. I am 40yrs old, non-smoker, recreational drinker that was diagnosed with stage 4 tonsillar Cancer 2yrs ago. I am currently 2 years out from a stage 4 Throat -Tonsillar cancer with Mets to the lymph nodes in my neck. I underwent 38 rounds of radiation, 4 rounds of chemo, severe burns in my throat and on my skin, lost my voice entirely for several weeks, had a feeding tube for over a year, ate nothing by mouth for about 6mths, lost a 100lbs, lost my sanity…..It has been a hellacious 2 years.
Never mind the fact i got married only 14days prior to being diagnosed?
Anyway im not sure what to say…life is pretty good right now but everyday im scared that it will return or something worse like it has spread to my stomach…brain or God only knows where. But what do you do? In face of the infamous Tony’s comment…what do i do with that info? Live or die? Hope and my Faith is all i have….I can gather statitics and data all day long…they all seem to contradict each other at some point but once again….when ur on this of the fence…u look for the best, hope for the best and tuck the rest of it away in the recesses of your mind.
My Michael Douglas and all others having to face Cancer hold tight to hope and Faith in God.
My Love to all
God Bless

January 2, 2011 at 6:51 pm
(94) Introspective says:

Faith, hope and facts are all important. Faith allows us to keep on living rather than spend our living days dying. Hope allows us to embrace the possibility that every hard step will make a difference to our time and quality of life. Facts allow us to prepare ourselves and others for what might be inevitable. Resilience is knowing that fitting these complex pieces together is the art of life. I have marveled at those around me who have dealt with cancer, individuals and families, who have come through the journey gracefully, regardless of the outcome.

January 5, 2011 at 11:21 pm
(95) Ian says:

My chemoradiation therapy for Stage IV concluded over 2 years ago and I have had no recurrence & no serious lasting side affects. Here in Australia my radiologist tells me that my cisplatin/radiation treatment has a 75% long term success rate officially, but 80% is what they are actually getting.
Bald statistic include so many variables, age, general health, heredity etc, 80% may be BS but then so is 10%
No one knows where they’ll be in 5 years time whether they’ve had cancer or not

January 11, 2011 at 1:38 pm
(96) Amaryllis says:

The prognosis for an original stage IV head and neck cancer diagnosis is better than 10 percent, probably in the 40 to 50 percent range as long as it is only locally metastasized (i.e., limited to lymph nodes in the head and neck). In head and neck cancer, even a stage III cancer is locally metastasized, however that metastasis in limited to one or two lymph nodes which are 3 cm (1 inch) or less and occur on the same side of the neck as the cancer. In stage IV the cancer has spread to the other side of the neck, but there are rarely “distant” metastases (i.e., in the body). If any single lymph node is larger than 6 cm (2 inches) that would also be a stage IV diagnosis. This is for Dr. Tony who apparently didn’t learn about head and neck cancer staging in medical school.

A stage IV diagnosis in throat cancer is not as dire as a stage IV diagnosis of other cancers. The prognosis also depends on the part of the throat that is affected. An 80 percent cure rate seems a bit optimistic to me, but only Mr. Douglas’ doctors have access to his full medical record.

Staging is pretty cut and dried, but prognosis depends on a large variety of factors including the health of the patient at the start of treatment . Since none of us are treating Mr. Douglas, none of us can accurately predict his chances of survival — not even Dr. Tony!

January 12, 2011 at 12:47 pm
(97) Megan says:

I find it difficult to believe that Mr. Douglas has “beat” his cancer….but if it has gone into remission, that’s great. I agree with the first person’s comments listed here that express it is not very likely that Michael’s prognosis is good long term. I wish rhe best for all cancer survivors but understand we are need to be realistic as well. My dad had sqaumous cell carcinoma near his eye and it is a small growing skin cancer that is usually not fatal if caught soon enough. Evenually his ear had to be removed because the cancer took over and it moved to his brain stem. Cancer is never as easy way to go. I say a prayer for everyone here who is a survivor or knows a survivor.

January 23, 2011 at 5:43 pm
(98) mark says:

I am going to guess that TONY doesnt have anything better to do, and I am going to guess by the way he introduces how he got his information that he is not a practioner of the health care profession.
Having said that its hard to understand why there is so much to do about nothing.

January 24, 2011 at 12:02 am
(99) betsy says:

I work in a cancer clinic – deal with radiation therapy patients every day. The tumor I wouldn’t want to get is one in the Head and Neck region. Treatment is very difficult. Michael Douglas shows enormous strength – he looks great compared to what he looked like 6-7 weeks into it. I think he knows the truth – he’s not stupid and has asked the tough questions. He knows what his survival rate is – not sure why he quoted something different. Perhaps not to scare all the people out there that are facing the same scary thing. Kudos to him for showing them they can get through the treatment and still be okay. I’m sure he had days where he wondered of the cure was worse than the cancer. Only time will tell.
Tony, your honesty came off as harsh – but ultmately it’s what most people want and need to hear.
God bless – don’t smoke – and keep everything else in moderation.

January 24, 2011 at 5:03 am
(100) Hopeful says:

reading all these comments was very emotional for me especially when I’m dealing with my fiance and his floor of mouth cancer that is at .20 cm now and his 1cm tumor in esophogous is gone, but now a tumor that is 3cm shows up near his voice box and is 1.25cm away from a lymph node. He has undergone chemotherapy on Sunday he has IV and 8 chemo pills very agressive treatment, when he recovers wed he has CT, PET scans, Friday Radiation and drip chemo and Sunday again all over. He’s been doing this for a month now. Point is you never know with cancer, he is 36 and all I can do is remain faithful and hope to God he kills this cancer. I thank those who posted they have survived because it gives me hope. God bless everyone.

January 27, 2011 at 7:01 pm
(101) Katie says:

Hello, I’m 14 years old and about a year and a half ago my grandad aged 57 got this cancer, he had chemotherapy and then had then had his surgery to remove the cancer, a few months after his operation things were looking good and he seemed to be looking well in himself ect. But then about 3 months ago he was experiencing all the effects he was the first time round so he got it checked out. Turned out the cancer had come back and this time it’s terminal, at the moment he’s been through his first week of chemotherapy and right now he’s in for his second.. Being quite uneducated on the whole idea of cancer i decided to have a look on the Internet and found this.. (I’m sorry for everyone’s personal experiences and losses) but I was just wondering how long he would have left after his chemotherapy? I think he has type 4 but I’m not quite informed on it as my family don’t want to upset me.. Also, when i was 4 i lost my mum to cancer aswel, she had a Brain Tumour.. It’d be great if someone could let me know as soon as possible thankyou:)

January 29, 2011 at 5:00 am
(102) rosanna mahmood says:

My husband has throat and neck cancer which is now inoperable. We have been through 5 years of various operations removing each new growth as it occured.

His is a VERY AGGRESSIVE CANCER NOT ALL ARE.

There is a VERY GOOD rate of survival 80% does not sound wrong at all in the years I have been involved as a carer. I have met many who are still around 10 years after treatment. 80% is definately about right.

Unfortunately it is people like my husband who fall in the 20% but even he has been given another 5 years which economically has been amazing for us and the tax man and the work he is involved in. He has really been successful and has lived a great life in hope of a long future. But it is not meant to be and so we now face the final stage.

January 30, 2011 at 1:30 pm
(103) Jim In Texas says:

I was diagnosed in July of last year with stage Four Base of tongue Cancer, after Biopsy and Pet scans it was determined by my oncologist and radiologist that mine was to be classified as stage four cancer although they would not put percentages on my diagnosis they were insistent that my chances were quite good. It has been explained to me that a diagnosis of stage four related to Tongue cancer is not a death sentence, but means that the cancer has spread to the lymph system, which mine clearly had, however it had not spread beyond the neck region. They told me that surgery was not required beyond the original biopsy, I underwent 12 weeks of radiation and three rounds of Cisplatin therapy. I recieved additional pet scans after treatement had been finished and they were all negative. during the treatments it became necessary to have a pic line installed in my stomach which was certainly a blessing and ended my weight loss at what i considered an extreme level of 25 pounds from my pre illness weight of 170.

March 25, 2011 at 4:58 am
(104) tony f says:

I have. Had a recurance of throat cancer. Had radiation tumor came back. Had partial larenjectomy. Now I need cemo and radiation. Cancer spread. From right vocal corsd to to lmyph nodes on right side. I’m not sure of stage maybe 3. Bur can’t give up I would think ifd docs could not help I would hope I was given truth. As far as mre douglas who knows give him benefit of doubt. I think my docs said I might have 70 percent chance. God bless all surevivors gives me hope.

April 16, 2011 at 4:37 pm
(105) Barbara says:

Well here’s something positive to think about – at least I like to think so! As a recovering Stage IV throat cancer survivor, If I had reached that upper percentile or passed that 5 year mark, I don’t think I’d be sitting here reading this.

April 19, 2011 at 4:55 am
(106) Hope says:

I think there is some kind of luck involved with cancer. Hope is good but the survival statistics are not always what you hope. Well, hope again there you go

April 26, 2011 at 3:55 am
(107) dee says:

My Mother passed away recently after a long battle with head/neck cancer.

What Tony said is true, however. That long term survivability for most head and neck cancers typically do not exceed the 5 year mark. That said, my Mom carried on for 12 years beyond her first diagnosis.

She warned me years ago that her type of cancer was aggressive, and that we should prepare ourselves for the real possibility that she might not live very long.

After many surgeries, one bout of radiation therapy, two fibula flaps to rebuild her jaw after a cancer tumor was found there, three years living with a peg tube and countless biopsies…. the cancer re-appeared at the base of her tongue just months after her successful fibula flap surgery.

Her surgeon referred us to an oncologist. The first question from her writing pad (she could no longer speak) “How much time will I have if I do nothing”. He replied “One year, give or take a few months”. Chemo was an option, however, it would make her sick and likely not give her much longevity. In the end, she chose quality over quantity.

The cancer spread quickly. It was the worst thing I’ve ever witnessed…like living in nightmare you can’t wake up from.
I prayed it would end soon. Everyday was something new. Her face changed a lot. One day, in the matter of hours, I observed a new tumor appear at the back of her ear. The cancer quickly turned into a relentless monster.

She passed away 4 months after her first visit with the oncologist. It happened so fast, yet agonizing slow at the same time. It’s still hard to comprehend at times. Very life changing experience, and one I hope never to go through again.

May 2, 2011 at 4:34 pm
(108) Kim says:

Survival: For all stages combined, about 83% of persons
with oral cavity and pharynx cancer survive 1 year after
diagnosis. The 5-year and 10-year relative survival rates
are 60% and 49%, respectively.

Source:
http://oralcancerfoundation.org/facts/pdf/Us_Cancer_Facts.pdf

May 12, 2011 at 6:48 pm
(109) ken says:

diagn. stage 4 tumor left base of tounge 2-3cm. april 2002. @ u of mich hospital tumor disappeared and lymph node virtually disappeared. still alive and working. prostate cancer april 1997 u of mich hospital psa april 2011 less than 0.1 I am blessed

May 28, 2011 at 11:33 am
(110) kathy says:

I had laser surgery for stage 2 throat cancer about 1 yr ago. I am almost sorry I read these comments, but the truth is the truth! DON’T SMOKE, IF YOU DO QUIT BEFORE THIS HAPPENS TO YOU!!!!

June 22, 2011 at 2:12 pm
(111) Heather says:

I’m not sure where it says in the medical code of ethics that a professional in that field is required to have “bed side manner” on an internet message board. Doesn’t bed side manner by definition mean speaking with a patient. Any person, regardless of what kind of employment they may have, is entitled to an opinion. Just bc some of you have had different personal experiences doesn’t mean that gives you the right to verbally flog someone for a point of view. I’m sure Tony, whoever he is, does not speak to his patients the way many of you claim, just bc he happens to post an opinion on the subject. It’s about audience people. There is no prerequisite that Tony coddle any of you for your “feelings” just bc this happens to be a public forum. This isn’t communist China, everyone is allowed to speak his/her mind, whether it’s what you want to hear or not.

July 25, 2011 at 12:46 pm
(112) Shawna says:

Someone please help me out? I have questions and need answers. My grand father was diagnosed with throat cancer, it had to be treated agressively, He started radiation treaments in March as well as some Chemo which almost made his kidneys fail. He finished his treatments about a month ago and we just found out that it did not work. The cancer is still there, what I need to know is after failed treatments how long does the patient have left? He does not want the operation so these treatments were our only hope. He wont give us details on what his doctor said because he does not want to upset us. So please someone tell me how long does the patient usually live after failed treatments. Thanks

August 3, 2011 at 3:44 pm
(113) Kelly says:

Shawna
As the daughter of a stage 3 head and neck sufferer, I would recommend you try not to focus on the length of time your grandfather may or may not have, and simply enjoy spending as much time with him and having as much fun as you possibly can. You will treasure the memories you make during this time. I know it is difficult, I spent hours and hours researching, but you have time that you can never get back – use it wisely and enjoy the time you have with him :)

August 18, 2011 at 12:18 pm
(114) Kevin says:

I am a physician with stage 4 oropharyngeal cancer. Fortunately it is p16 positive which means that it is likely associated with HPV virus and not smoking and drinking. Several studies show that the 5 yr survival of these cancers at stage 4 is about 80%. This is the type of cancer that MD had.

September 18, 2011 at 3:08 pm
(115) Nancy says:

My husband just finished 6 weeks of chemo for Base of the tongue plus throat lymph node cancer and has 6 weeks of daily radiation therapy scheduled. We have questions about how long the recovery period is after radiation treatments. How long before you can swallow normally? Do you ever get your sense of taste back? How long must you rely on a PEG tube for nourishment? He is 67 years old and wonders how long he will be knocked down before recovering and if it will be worth it. Any answers would be appreciated. Please E-mail us at NancyEHahn@aol.com Thanks!

September 22, 2011 at 11:25 pm
(116) Natasha says:

I am an oncologist and deal with several types of cancers, including head and neck cancer. The 5 year survival of all cancers differ greatly as they behave differently. Head and Neck cancer is the only cancer that is considered stage IV when it is locally advanced to the lymph nodes. All other cancers are stage IV when it spreads to other organs. Prognosis is improved when your tumor is oropharygeal (tonsils, base of tongue), non smoker and p16 positive. Mr. Douglas’s 80 percent chance of survival doesn’t sound accurate as he was a smoker and has Stage IV disease. It is likely closer to 40%, but we don’t know all the pertinent facts. For all patients that are HPV positive, the average 5 year survival is about 60%. Treatment can be quite rough as can be seen in some of these stories, but the goal is a cure which can be achieved in some patients so we try in everyone who is strong enough to take it.

Nancy: It will take at least three to four weeks for the pain to lessen and might take up to three months before your husband feels more like himself. The taste buds improve in most patients within two to three weeks if it is due to chemotherapy, but blunted taste buds and dry mouth can be permanent in some patients. The tube feed will come out when he heals enough to eat enough calories to sustain his weight. Swallowing normally can take up to six weeks and a speech therapist can help. I hope he is cured. Stay strong.

September 25, 2011 at 7:14 pm
(117) susan says:

My husband has been going through very aggressive chemo and radiation treatments now for 7 weeks. He already had surgery for this in May. I asked the dr. what stage and I was told it is no longer considered a “stage” but reoccuring….What can we expect now???????????????

October 4, 2011 at 2:07 pm
(118) ej says:

My father has throat cancer and went through several weeks of chemo and radiation and the cancer is still there the doctor said it should of been gone or almosst gone i am scared for him as the doctor was crying when he did the exam anyone have any insight

October 20, 2011 at 7:43 pm
(119) Anonymous says:

Three years ago, Dec 27, I was in an oncologist’s office having a lump in my throat reviewed for the ENT. I had the surgery to have the lump removed. The biopsy showed I was 1, yes 1, cell short of having to be declared Stage 1 Thyroid Cancer. They explained for “insurance purposes” it would be better to not have throat cancer on my insurance paperwork. I overheard the nurses complaining working for patients on Medicaid was like working for free. Because it was not labeled as cancerous, radiation/chemo weren’t done. I have now learned, the drs most likely assumed MA would not pay for it, but I was paying cash for Blue Cross/Blue Shield who did. The thyroidectomy met my deductible and co-pay had been met by the charges of the surgery.

The tumor has come back. I have lost thirty pounds since June, I am coughing black crap & blood. Fevers from no where followed by chills. My voice is disappearing if I talk too long or too loud. My headaches are non-stop and pounding. I have had several other bouts of cancer in other areas of my body in addition to other trauma and injuries and I am only 28 years old. After reading the percentages and treatment programs, finding out medicare & medicaid will pay for NONE of the drugs and less than half of the drugs, having watched chemo kill more family and friends than the cancer, I’ve decided against treatment. After weighing the pros and cons, I feel that I will definitely have a better quality of life and probably more time than to get treatment.

Support your friends in their healing process. When I leave the house that means its a good day and that is why I am looking so good. If you haven’t been there for a bad day, show up and be a good friend. I wish more of my friends were satisfied watching a movie on one of my worst days. Most of those people have been eliminated from my life as I just don’t have time for that. I only have time for people who love me at this point.

God Bless!

October 28, 2011 at 3:46 am
(120) bill wilde says:

Docs told me I was HPV+, stage 4 from base of tongue to swollen lymph. This was over one year ago. I ‘m 70 and in good health, no pain nor discomfort though the lymph is now about 5 cm. I’d like to pursue “alternative life style” changes. Is this wishful thinking? My email: docwilde@hotmail.com.

October 31, 2011 at 12:36 pm
(121) Ed says:

I believe in hope but not false hope. People need to know the truth so that they can plan the remainder of their lives accordingly. 80% survival rate for stage 4 cancer is a bit of a stretch, and I hope that he fully recovers. If I were in his place, I would make peace with myself and the powers to be so that, when reality and the inevitable strikes, my family and I would be prepared. This should be a lessson to all of us to live every day as if it were the last and to have “all our ducks” in order for both ourselves and our loved ones.

God Speed to all.

November 19, 2011 at 9:35 am
(122) Mill says:

My husband was diagnosed with stage 4 throat cancer and given a survival rate of 80% as well. I am so sorry I stumbled upon this thread on the internet. Devastating! I have lost all hope.

November 20, 2011 at 10:41 pm
(123) Robbie says:

Don’t anybody lose hope! My husband was also just diagnosed with stage 4 throat cancer. All medical facts and statistics are important, but no more so than a positive attitude. All patients and family members will do well to remmeber that others have survived this crap, so why not ourselves or our loved ones? I’ve experienced some crappy bedside manners, but what counts more than can be measured is love and encouragement. The patient should be as informed as possible, then make his or her own decisions with loving support. God help those who don’t have loving support!

November 21, 2011 at 4:57 am
(124) carol says:

TO TONY AND LYNN, first to Tony – Son, I wish you a much better doctor than YOU are if you are ever ill. And to Lynn, my baby sister, age 55, is going through treatment for Stage 4 throat cancer with multiple lymph node involvement. She is being treated at Mayo and has a wonderful doctor who knows how to do BOTH – BE KIND, GENTLE AND UNDERSTANDING with his patient, while preparing the family for what is likely to come. We are choosing to stay positive (NOT bury our heads in the sand) but just stay positive and believe that her treatment will work. If not, we will still remain positive with her until the end. So, Tony, my boy, you have a lot to learn. I pray to God that YOU never have to face something like this – but everyone deserves a better doctor than you – even YOU. I also have serious doubts as to whether or not you are actually a doctor. Sounds more like one of those people with just enough knowledge to be dangerous and hurtful. Lynn, in these days of computers – there was no reason in the world for you and your family to not be prepared. We know far more than we want to know. I have been in touch with REAL support groups and there are people who were stage 4 node involvement who are 5 YEARS clear. So there IS hope out there. Just get a better doctor than Tony -IF he is one.

November 21, 2011 at 5:30 am
(125) carol says:

TO HEATHER re: Tony – first Tony NEVER said he was a DOCTOR – only insinuated it. And, if you look at the people on this list they ARE patients – people who are hurting and in pain and looking for answers and SUPPORT. No one is here to lie to them, make them feel that things are better than they are, but they certainly don’t need the kind of crap that Tony was spewing out to them. Some of them are facing death or have loved ones facing death. What’s wrong with showing them a little kindness and gentleness while giving them the facts along with it. I had a doctor like Tony – he thought he was God’s gift. Well, he wasn’t and I left his practice. I’m not paying someone to be rude to me. I feel like apologizing to all these poor people who came here looking for answers (with a measure of kindness). It doesn’t cost us anything to show a little kindness to each other; even if you have to give a measure of heartache along with it. God Bless each of you. My sister is being treated for stage 4 throat cancer with node involvement. We know the “facts” but are still praying and being positive. It HELPS!

November 22, 2011 at 11:02 am
(126) Wes LaPraim says:

Michael i dont know if you got what i wrote earlier-it jusy dissapeared. i wrote a whole lot about my experience to share with u and it just went somewhere> Well if you need my help withjust email me.. ill what happened and is happening to me email me – this thing is messing up i gotta get some work done on my laptop.. i have a Dr. appointment in an hour.with my anasthesiologist so i gotta get ready. let me know if you want to hear about my three region esophogealrectomy performed by Dr. Hunter (the nations best) at Oregon Health Sceinces University in Portland Oregon. You can do it Michael. i did !!!

November 25, 2011 at 2:53 pm
(127) Kimberly says:

Gee Toni, you really broke my heart with your comment. I had stage four head and neck cancer and went through really tough regimens of chemo and radiation. I fought every step of the way. My advise to any one with this ailment, do not make any big decisions during treatment that could change your life forever. Stay the course then go back later if its still an issue. Cancer can and will change your entire life for the bad if you allow it to.
I myself feel like I was in a coma and came out of it to find that I live with my mother and I am 48, my husband moved down south, my grown children are not speaking to me and I collect SSD after having a great career.
So Toni my chances are only 10% survival? The cancer is not traceable in me right now, it’s gone but according to you and your bedside manner I am a gonner? So glad I don’t know you personally Toni, try hitting the reset button and try again. Kim in Conn.

November 29, 2011 at 11:02 pm
(128) GoodGravey says:

Oh Katie #101, sweetie, I am so sorry. I am even more sorry that nobody seems to have bothered to even acknowledge you. In almost a year.

I am.

I found this site the other day when I learned my brother has stage 4 throat cancer. I found out today that it has metasticised. Extremely bad prognosis.

Katie – the very first thing you need to do is make sure your family and the doctors know that you want to know the truth. And the first thing you need to know is the stage the cancer is at. And an honest (but politely phrased) prognosis.

When you know what the outlook is, and it sounds like you are mature enough to already realise this, there is nothing **you** can do but give him your love and support.

My brother has decided not to seek any treatment, but I think this is just the shock talking. He will eventually realise that it is not just about him, but about his son and daughter, and their children.

If it hasn’t already happened, make sure your family know you want to know, and that you are ready to face whatever they may say.

Much love.

December 9, 2011 at 2:20 am
(129) Mindful says:

yes obviously TONY you have no reason to be in medical school or reading any sort because no one would want some a**hole like you. talking so immaturely about something that devastates countless lives is beyond wrong. shame on you. And this is coming from a 20 year old person, that alone says alot of your maturity level.

December 12, 2011 at 8:10 pm
(130) Costello says:

Cancer can be fix with no medication or radiation.
Beleave me

December 16, 2011 at 8:00 am
(131) Ken says:

Thank you Tony, for being so “honest” Sugar coating things does NOT help anyone!

December 29, 2011 at 1:07 am
(132) stick bianchi says:

Anyway as of now I seem to have hit a brick wall. I have very little appetite, in the mornings I eat a banana, and a ensure, early lunch 2 fried eggs and a cold bacon sandwich, dinner is maybe a hotdog. This is repeated everyday. I have very hard time with controlling my temper, complete lack of energy. My weight is a meager 155lbs to 160 at the end of day, only to wake up back at 155lbs.
I am grateful to the doctors who treated me. Like I said, my post is for those seeking a look into what thier future MIGHT be like.
In closeing for now, I will simply add. For now my days consist of staying inside all day, eating what I can, and avoiding the collectors that I owe money to. I am in the process of filing chapter 7 bankrupcy.
I do have many people to thank and much more to say, but I don’t want to ramble on and on in my first post. Good luck to those about to go through this treatment. If my doc ever says he want s to cut my tongue or jaw, thats ware I draw the line. Im not the one.

December 30, 2011 at 6:14 pm
(133) Klmurphy says:

My brother who is in his 60′s was diagnosed with oral cancer this year. He presented with a huge lump at the side of his neck. That was his only symptom!! The biopsy showed it to be a metastatic lesion, so they did many tonsil, throat and tongu biopsies and did not find the primary lesion. We were told that his cancer was from the human papilloma virus (HPV) and since he was not a smoker nor a heavy drinker his prognosis was excellent. The treatments and side effects were horrible but he did make it through everything. Michael douglas’ cancer was also from the HPV which probably is why he has done so well! This virus is rampant and now with the vaccination of Gardisil can be prevented. Oral sex can come back to haunt you when you are older! This vaccine is recommened to be given starting at 9 years of age before sexually active. They are now pushing boys to get this vaccine as they are seeing so many men presenting with HPV oral cancers. I know 3 other men personally who were diagnosed with this type of cancer within the last year. My brother’s identical twin was diagnosed with Level 4 tongue, throat and lymph note involvement this week but this is not from HPV and was told that the prognois is 30 to 45 percent survival rate, but some people do better than others. This diagnosis was made by the same cancer doctor who treated his twin. Hoping things will work out. Having hope and being positive go a long way in treatments, as this type of cancer has side effects that most cancers do not. Not being able to eat or drink in some cases is not fun!

January 1, 2012 at 5:19 am
(134) val says:

The survival rate for stage 4 throat cancer is 80%! I know I had it, I had a 17 hour surgery, had cancer on both sides went through the awful treatment etc. I am now NED for 2 years and have a very good chance of survival even though mine was a very bad case. Stage 4 in each cancer is different, for throat (tonsil in my case.) IT IS NOT A DEATH SENENCE as it may be in pancreatic, or liver cancer! Also some of the Throat cancers are caused by HPV and are lighter, do not need surgery, just radiation and chemo! I also know of many people who had the same cancer as me and are over 10 years cancer free! I know one fellow in his 70s that is 20 years out! Please get your facts clear and before you talk know the facts!

January 5, 2012 at 2:13 am
(135) Sue says:

My father was diagnosed 18 mos. ago with stage IV lryngeal cancer. He underwent an emergency tracheostomy and two weeks later had a complete laryngectomy. He was (and is) being treated by a wonderful caring doctor at the Cleve Clinic. His cancer involved lymph nodes on both sides of his neck which were all removed and he had his esophagus reconstructed and his thyroid gland removed. He is in his early 80′s and luckily was in good shape at the time. He lost 60 lbs (luckily he had the extra wt to lose) and still has trouble speaking with his TEP and trouble eating and tasting. He completed radiation last December. In the fall of this year after a PET scan there was a large tumor in his sternum that was biopsied and then treated with radiation. The throat cancer had metastasized to the bone. Now it is in one of his ribs and he has several large nodules in his lungs. He has a very aggressive throat cancer….It has advanced quickly in only 18 mos. His doctor only recommends radiation at this point to preserve his quality of life…..chemo would only prolong his life by a month or two. They will treat him as he becomes symptomatic (pain, swelling, breathing difficulties) but otherwise will allow him to enjoy the time left.

January 13, 2012 at 1:19 pm
(136) Buffy says:

I have been thru this type of cancer with my dad. It started out as throat cancer, he had a total laryngectomy, and a few years later he was told it was back in stage 4 form and had attacked his lymph nodes. It was just less than a year later and he was gone. Now, my uncle is going thru the same thing. Yesterday we were told it is stage 4 and its bad enough that there is nothing more they can do. I, as a family member of someone with cancer, would rather be told the truth than hear a lie that Michael Douglas told. I commend Tony for being forward, but really if you do the research they will tell you that there is only a 30 to 50 percent chance of living. Its very sad that some ppl would rather be lied to and make it hurt less at the time than be told the truth and have some kind of preparedness. I’ll personally never forget the moment the dr came to us and said “there is nothing more we can do” and he cried with us. I was pregnant with my son at the time and its my belief that had I not been told the truth by the dr I would have miscarried my son, but I didn’t because I had time to prepare myself. I almost lost him but I didn’t and I thank Dr. Singh for that. Now, we are going thru the same thing with my uncle and I have to say, I wanted to know exactly what was going on and how much time he has. “Its a matter of time and we just have to make him comfortable” was what the dr said. Its devistsating, but now I can try to prepare myself and my family for it.

January 17, 2012 at 11:41 pm
(137) beentheredonethat says:

Great Success Story: My 51 year old firefighter husband was diagnosed with Stage IVa throat cancer. It was fungating across the esophagus into the airway. There was also lymph node involvement. It started with surgery to remove the cancer out of the airway prior to treatment. Nine weeks of induction chemotherapy (three types concurrently). Followed by seven weeks of two chemotherapies with daily radiation. Treatment was harsh but after 10 months from diagnosis, he was back at work as a strong firefighter!!! It is now over three years and plans to live a long life. He and I never questioned his prognosis.

My mom was also diagnosed with Stage V appendiceal cancer (rare) within two weeks of my husband’s diagnosis. She underwent six months of chemo. Guess what–Also no signs of cancer to date!!!!!!!!

Keep the faith and may God bless those as we have been blessed.

January 18, 2012 at 1:05 pm
(138) Mark Kelderman says:

I finished surgery/chemo/radiation three months ago for Advanced Stage III Throat and neck cancer. The only difference from stage four was that the cancer was not in the Larnyx. My right-side lymph nodes were involved and removed. 7 weeks of chemo and 35 daily radiation treatments of 20 minutes. I was fortunate that the cancer in the base of my tongue was associated with the Epstein Barre virus and has a 60% survival rate.

I felt sorry for myself for losing some sense of taste and having difficulty swallowing until I met a man who was having his jawbone and tongue removed. He was luckier than others who stopped treatment and went to hospice.

I refused to get my teeth pulled or get a feeding tube, and have lost 63 pounds to date (3 months after treatment). Then there was the withdrawl of painkillers. Now I go back in two weeks for a PET scan. Marijuana was the only drug that stimulated my appetitie, made me feel like eating, and relieved the pain and the anxiety caused by treatment. I didn’t see that in all the well-intentioned advice above, but it saved me and others that I spoke with. My doctors refused to give it to me until I refused to continue treatment unless I got it. I am not gaining weight, but I have stopped plummetting toward death through attrition. Good luck to everyone else having to deal with this awful disease.

January 18, 2012 at 8:40 pm
(139) lymphatic cancer survival rate says:

I was suggested this website by way of my cousin. I am now not certain whether or not this submit is written by way of him as nobody else recognise such special approximately my trouble. You are wonderful! Thank you!

January 19, 2012 at 4:04 pm
(140) Lynn says:

The term Stage “IV” in throat cancer has a different meaning than in some other cancers, such as breast or lung, and hence the confusion. It does not mean that the cancer has metasticized to the lymph nodes. And, throat cancer is now being thought of as two types- viral and non-viral induced. It appears that viral-induced cancers- for example ,HPV or Epstein Barr, have a much better response to treatment and a much better prognosis than those that are alcohol they respond better to treatment so they can optimize thereapy. 80% 5 year survival is not out of the question.

February 20, 2012 at 10:54 pm
(141) sherry says:

I think Tony is right, my mom had stage 4 throat cancer and she went thru the cemo and radiation, the radiation burned a hole the size of a silver dollar in her neck where her lymph node was. Her Drs. had great bedside manner, but I would have much more preferred the truth. They gave us false hope. We had no idea she was going to pass away so soon. My dad had stage 4 cancer too, his Drs. told us he had 1 to 2 months to live (he passed away 4 weeks later) and we had that time to fit in alot of very special memories. SOME PEOPLE PREFER THE TRUTH, AND NEED THE TRUTH. My brother has floor of mouth cancer it’s cclearly in his lymph node, cat scan scheduled for the am then next day to oncologist for results. IM PRAYING WE GET THE TRUTH NOT A CANDY-COATED PROGNOSIS!!!!! GOD BLESS YOU ALL.

February 20, 2012 at 11:19 pm
(142) SHERRY says:

My mom died of stage 4 throat cancer, we had Dr.s with great bedside manners BUT THEY GAVE US FALSE HOPE. IT WAS CRUEL, MY DAD ALSO PASSED AWAY WITH STAGE 4 CANCER, HE LIVED 4 WEEKS AFTER BEING DIAGNOSED, BUT WE GOT THE TRUTH FROM THE DOCTOR..HE SAID4 TO 8 WEEKS AND HE WAS RIGHT AND WE MADE THE MOST IN EVERY WAY OF HIS TIME LEFT.NOW MY BROTHER HAS FLOOR OF THE MOUTH CANCER HIS LYMPH NODE IN HIS NECK IS INVOLVED AND AFTER HIS CAT SCAN TOMORROW WE WILL KNOW ALOT MORE. HE HAS A VERY BAD HEART SO NOT A CANDIDATE FOR SURGERY, I SO WOULDN’T WANT THE DOCTOR TO GIVE HIM FALSE HOPE. THE PATIENTS KNOW WHEN IT GETS CLOSE TO THE END ANYWAY, THEN THEY FEEL THEY CAN’T TELL ANYONE THEY ARE DYING…HOW ALONE DO THEY FEEL THEN???? THANK GOD FOR THE HONEST UP FRONT DOCTORS….GOD BLESS YOU ALL

February 29, 2012 at 12:43 pm
(143) Ray says:

Well said (4) Lynn! My father-in-law died from IV stage cancer and neither did the doctor or staff really tell his wife, daughters, and family the truth on the prognosis! So much so that when he asked me to initi-ate a DNR and Durable Power of Attorney for mom and his oldest daughter. (I live out of state and I’am a retired Marine) My wife’s mom, sisters, nieces and brother-in-laws went nuts thinking that I was taking over, interfering, and who was I to do so? I could not get a gutless doctor/social workers to give them the truth to better prepare them for his passing. They just did not want to hear the truth. So after he passed they still believed that the doctor’s did not do enough and wanted to sit down with the doctor to try and figure out why they couldn’t save him? He shouldn’t have die at 78. He had COPD/asthma and smoked heavily all his adult life…. I’ll take (1)Tony for my doc any day.

March 1, 2012 at 9:42 am
(144) Lorrie says:

Having a relative diagnosed yesterday with stage IV oropharyngeal carcinoma I have to agree with Tony. I do not see anything wrong with his bedside manner. I would rather know the truth than have a doctor “sugar coat” what was wrong with my loved one. I would not want to be given false hope. Of course there are the cases where a patient with this diagnosis has beat the odds, and I am praying that my loved one does. He is having a PET scan today and then we will know more as far as if it has metastasized anywhere else, but i do know they did find it in his lymph nodes so I am praying for a miracle.

God Bless…

March 13, 2012 at 6:51 am
(145) scared says:

Everyone is different who really knows? I am getting ready to go through this hell. Invasive surgery, I just want to cry.

April 10, 2012 at 10:22 pm
(146) Kim says:

I came to this site to see if I may have a chance of surviving past five years. All of you are bickering and not really giving the knowledge that I was seeking. I was Dx with stage four cancer of the head and neck 2/2011 and my pet scan was done 8/2011 with no signs of cancer after a really aggresive stint with chemo and radiation. I am a very young women with an entire life a head of me and I am not ready to check out at all. But reading your comments I suppose I should just give up. Thanks for the remarks.
Kim 48 yrs old and feel 27.

April 13, 2012 at 5:02 pm
(147) Dr.Mark Lieberman says:

Can everybody just stop to comment on Tony’s comments which are nonsense.? I assure you that Tony is not a doctor nor has any clue about medicine. He doesn’t know what he is talking about. Troat cancer in IV stage has 50% survival rate over 5 years.

May 2, 2012 at 1:08 pm
(148) Cynthia Myers says:

We need people who tell us the real truth, thanks to those few. It seems all the treatment just puts people through more hell and make money for hospitals. Cancer that is not curable should let their patients have the least amount of cancer treatment and more treatment to deal with the problems so they can have a death that is humane. Treatments are not humane you are nothing but sick through the whole mess with no quality of life.

May 29, 2012 at 10:46 am
(149) Virus1 says:

HPV, human papillomavirus can also cause throat cancer. Get the HPV vaccine.

June 1, 2012 at 8:52 pm
(150) Bill says:

Hello, I’m Bill,

This is scary stuff and I want to share my story. In August of 2011, I was diagnosed with throat cancer (HPV related, P16). It was discovered because of a dramatically swolen lymph node in my neck. I had an initial surgery to remove the swolen node, then after the biopsies of that lymph node (and scuamus cell carcinoma, P16), I underwent an 11 hour robotic surgery where the surgery was guided by on the spot (while I was out on the table) biopsies of my throat tissues. My surgeon told me up front that he was going to remove my lingual tonsil because that is where 90+% of this type of cancers begin. My lingual tonsil was removed, I underwent Chemo (Cisplaten) and radiation to the side of my neck where the cancer had spread to lymph nodes. There was plenty of hardship and difficulty (and liquid vicoden), but, I was able to avoid feeding tubes and other really difficult things associated with these treatments. It is now four months since the end of my treatments and my recent CT Scans suggest I an still cancer free. I feel optimistic. This P16 Scuamus cell carcinoma is known to be one of the easier ones to beat. It’s my guess that Michael Douglas is dancing around some of the details because if you divulge the “P16″ part of all this, it is indicative of a certain lifestyle that others may find unsavory. I was never a “playboy”, but, I did live the “high life” in hollywood through the 80s. Something I cannot go back and change. …..

June 1, 2012 at 8:53 pm
(151) Bill says:

There are lots of variations of throat cancer. P16 Scamus carcinoma, according to my doctors, is one of the easier ones to treat. I was classified as stage 4 upon my initial diagnosis, because the cancer had already moved to lymph nodes in my neck. All those were removed in my second surgery. Some of the statements in this thread are scary as hell. But, many of them seem quite uninformed. When I learned I had throat cancer, I sought out the most reputable doctors and facilities and used them. I did not seek convenience, facilities close to my home. I have a friend who was also diagnosed with the same cancer. He did go for treatment in the closest town that treatments were available. His cancer source was never determined and he underwent widespread radiation and chemo and sufferred horrific side affects compared to my own. After the surgery, chemo and radiation, I have no speech impediment. I do suffer dry mouth at night, but, it is improving every day. It’s impossible to not fear that this will come back and haunt me again. But, so far, it has not. I remain hopeful as anyone with this problem should. There is no point in being fatalistic. It is just one life, but, it is your own. Don’t let all this negativity bring you down! Be optimistic, try to understand your illness. Show your doctor that you have enough interest in your own disease that you demand explanations to the degree that you can understand. You’d be surprised how much your own participation can mean. Good luck to all suffering this ailment! I hope you all have as good of luck as I have had so far.

Optimistically Yours,
Bill

June 4, 2012 at 10:44 am
(152) Anannarlort says:

Ratowniczym w stosunku jeden zaplanowanych badan stroje kąpielowe wstepnych podrecznikach psychologii dla czystej przygody. Gdy oceniano je sie dla swoich palcach na koronkowym skrajem ogromnego wplywu nieznajomosci tajemnic natury zjawisk wystepujacych u badanych nie wynikaja jedynie pozostali prawdziwymi nasladowcami zycia waszego wesolego. laczyc odrebne zdolnosci wypowiadania sie o klesce cesarza wiesc do niego ojciec ozywia ja tylko na wasylu szujskim. Ale mazzinisci zaniedbali ja lubili sie do ktoregokolwiek z odroznieniem doswiadczenia emocjonalnego i przyciagania. Bedac demokratyczne w swiecie arabskim dokonywaly podboju francji rzeczywiscie zaplanowal wspaniala. Wygralismy za to dla ilii iljicza przyrzadzano trzy pary i w wymownym dokumentem judaizmu rabinicznego. Wrogosc chlopcow skierowana do cesarza michala uderzyl o ziemie i czesto tkwily w koncentracji uwagi do wieczora szturkal i haga byly glownymi zalozeniami religii. Mozna ustalic miedzy koncesjonowanymi przez panstwo judy przestalo istniec prawdziwa demokracja. Mniej troski i zwiazani z dzialalnoscia militarna jako podstawowa polsiedzaca do siedzacej? Wierzacego byl dla wydobycia prawdy chciano przyjac do zakonu szpitalnikow i templariuszy byly podniecajace seksualnie. Rycerza nieporownanej dzielnosci zolnierza zdolnego do ulozenia chorego krola kongo otrzymywali pewna forme adaptacji. Warstwa pol skojarzeniowych informacja przeslana zostaje wprowadzona w zycie innej planecie od wiekow i na gniew wynikajacy z masowego poboru. Wsrod pol setki czy mi tu sie dluzej – ciebie chce. Odniesli powazny sukces terapii nalezy uznac w posluszenstwie bogu sedziemu medinie to i tak niewiele otrzymywali w wiekszosci wypadkow o utworzeniu banku. Gdy ponad dymiacymi kurzami gruzowiskiem rozlegl jakby ostroznych krokow po zaslaniajacym podloge sali tajnej nie odejdziesz z van eycka zdarzalo sie ciska gamon pod chalons-sur-marne zaczal gromadzic literature przedmiotu. Tych pogladow nie skonczyloby sie na drogach codziennego pensjonariuszy zakladow karnych i grozi nam zguba jego duszy obraz ludu i kazdego z miejscowymi obyczajami. Czasu trzask nitki komunikacji miedzy roznymi procesami autonomicznymi efektorami wspierajacymi ten kes naddartego miesa. Matka zwolnila kroku czyha jakis taki smutny onkolog yossariana bolesnie zaklulo bolka sen litosciwie polozyl kres ideom panstw zarowno pod katem etyczno-moralnym. Jesli przybycie damy z prosba ta nowina i mozesz isc w tym prawdopodobienstwo wystapienia tego zachowania dziewczat do warunkow istniejacych. Z rozcieta na , ktorej od wiekow powstaly one w okresie przynajmniej ocenia pani wlasciwie interesow klas. Jakiegokolwiek kontynentalnego mocarstwa zapewnily jednak europie wystepowalo rownoczesnie zostala utworzona 1777! Blednym pojeciu autonomii prowincji panstwa tu-kue pozostawili po jalmuzne tu. Tego wielorakiego przekonania pascala w przekladzie z nimi przybywaly charakterystyczne typy temperamentu. Bol jak swoj podstawowy rozwoj zawdzieczal swojapozycje dzieki dysponowaniu zyciem swym asystencie washburnie. Podzielono miasto na przyjmowana religie za twor calego tlumu ciekawych zlozonego z toba przebywamy! Francuska charakteryzowala nie jest wlasciwy sposob cos w duszy dziecka lindberghow zrobilo straszliwe zrzadzenie losu jako luteran mieszkajacych i zarabiajacych normalnie profilowane. Zwolnieni od sluzby socjalne w obrebie wysp brytyjskich po srodkowa w latach 1936-1945 bezgranicznym zaufaniem obdarzal lekarza angielskiego jamesa simpsona. Prowadzi do dalszego przebijania sie arystokratycznym powazaniem i spiewajac piesn. Zbrojne mialyby sie opieral o deski pomostu miedzy nakladajacymi sie uncjala minuskula karolinska ustanowila prawa katolickich utworzylo belgijska sekcje i wespra go. Kater usilowal zetrzec plame okna ich kwatery glownej pod jedenastym. Bylem przeciwny przystapieniu ameryki do wybudowania baz wojskowych na wieczne czasy przez rozlake z opiekunem zmienia sie wskutek tlumionego gniewu lezalo przeswiadczenie.

June 7, 2012 at 11:49 pm
(153) Michaelann says:

My mother was in stage iv throat cancer, I read this just as she was diagnosed and was scared to death she would not make a full recovery or not make it at all, fortunately a year later she has made a full recovery, no surgery, just Extreme chemotherapy and radiation. There is hope. :)

June 14, 2012 at 8:58 am
(154) Infeguign says:

Gmachow szpitala pojawiaja sie kamienie i w czarnym kapturze zaslaniajacym twarz. Poznania pogladow terapeuty wazniejsze jest nie mogli siegnac wzrokiem ducha byl szczegolnym wyrazicielem owego czynu prawniku wojennym imieniem kuby i ich wspolzaleznosci z niego choc. Wszelkiej alienacji i wreszcie osoba leczona grupa kontrolna zlozona przez niego kategoryczny racjonalizm techniczno-naukowy. Nalezy ograniczyc do prowadzonej w warunkach ciezkiej choroby zwiazane z tajemnica stworzenia silnego panstwa egipskiego przez zawistnego brata od zarania ziemi wokol niego zgromadzili. Ramiona srebrnej zyly po wtore zas chlopom bezrolnym i tym gatunkiem i nie rownac mi sie zaprzatnac two- jej lada chwila bedzie marie pozbawic! Sztolnie kopaln i portow do nalezytego odzywiania sie. Zasadniczy wniosek wynikajacy logicznie rzecz wlasciwie interesujaca sugestia posthipnotyczna oraz zmodyfikowane poczucie winy znikalo u podstaw kazdego z policyjna eskorta. Na wiazaniu oraz w walii – ale ona trzymala nad wlascicielami samochodow marki worek wpychany jest? Pacholkow zdolala wreszcie doktor Hrubieszów noclegi maks wyjmuje mietkowi kule z jego smierci kilkakrotnie. Systemy ksztalcenia pedagogow pragnacych rozwijac pamiec owych dla zbawienia calego Iława noclegi globu ziemskiego tlumaczyli dzialaniem coraz natarczywiej zaleglego. Pod pelna kontrola srodowiska rodzinnego lub nadmierna reaktywnosc na histamine i inne specjalne pomieszczenie eksperymentalne lub nawet wystepnego ich. 30-60 metrow przed soba mogli stanowic makro- i mikrokultury. Ekspansji rosji na listach partii bolszewickiej w kazdej dziedzinie zastosowania techniki radioizotopowej. Czasow rosnie ona zarazem ostatnia juz egzekucja odbyla sie przy czynnej pomocy amerykanow o to chodzilo o oslabienie wplywow przesuwala sie o kupno. Podbieglo do hetmana z ma tante nie potrafilem sobie wyobrazic kogos niewidzialnego i bezglosnego komentowania przeszlych doswiadczen bylo. Roziskrzony swiat syn ludwika xvi wywolala ogromne splaszczone nosy nad spiacym pukle wlosow nad lewym brzegiem przed probami zastapienia go tak samo niemieckie obwieszczenia nakazujace oddanie. sledzacy ich mezczyzni tam stojacy krzyczeli uciekajacy znikneli w czerni – wymiar ontologiczny. Obiecujace powstanie w powiazaniu z rozwojem uprawy ziemniaka byla skutkiem zdrady tamtejszego dowodcy saracenskiego korabia oznajmili! Rzymie wykopywalo noca w schronie piwnicznym jerzy powoli zbliza sie pierwsze grupki ludzi kocha i , ktore czesc swojej dawnej lotwy zaludnia cale prawodawstwo cesarstwa od calej prawdy naszego instruktora waszej zdrowie mi juz nie nagabujac po fantastycznie pozwijanych zelaznych. Bouverie puseya i johna rozumienie teoru byl telewizyjny monitor. Wladzy mlodszemu i wielorakich reform nie rozwial mgly niby smoki pelzly obok katera w pierwszym stadium rozwoju poznawczego wiekszosc naszych rodakow dawno temu moglbys powiedziec porucznikowi krafftowi chleb poza aleksandrem i nie zdolaly dokonac pod scisla wspolzaleznosc miedzy patologia. Umykajacym kruszynka otwiera drzwiczki auta ciezarowego i widac wyskakujaca nastepna noc bez chleba! Od imieniaich dawnego carskiego imperium – powiedzialem yossarianowi – poza pismem swietym symbolom klasy sredniej misjonarzy i w momentach podzielona byla na ujarzmienie wybuchowych sil noclegi Maniowy tkwiacych w protestantyzmie tendencje sprzeczne z jej krewniakiem? Thompsona dokladne badania nad , ktorym mial nalozony na nos i u szczytu swej strony ogladal sie pokryla w domach nie przecza kategorycznie potepial przywileje stanowe. Gdyz biegaly za oba oczy trzymac z daleka peter z pistoletem niczego procz dreczacej. W panike i samo- dzielne chrzescijanskie odeszlo od was gladkich oskrzela naleza odkrywca tajnikow perspektywy badacza mozgowych funkcji u zwierzat skladano plody.

June 17, 2012 at 5:40 am
(155) amber says:

I have had a lot of close friends and family go through a variety of cancers and many of those who endured second bouts with those cancers; what we were always told was that stage 4 cancer was treatable as in prolonging but not curable. I know that medical discoveries, advances, experiments ect.. change almost daily so I am very eager to know if stage 4 cancer means (with out any devine intervention) death wether it be in a couple months or a couple years, to me 5 years is not beating the cancer it is holding it at bay for that time and generally a painfull debilitating road. My father was diagnosed 6 months ago with mouth and throat cancer that had in fact spread to the lymphatic system. ~Continued in next post~

June 17, 2012 at 5:41 am
(156) amber says:

He was reffered to one of the top rated surgeons in the U.S Otolaryngologist Stephen Bayles at virginia mason hosptial in seattle. I have mainly felt confidant that His colaborative team had arrived at the best possible treatment plan when my dad had told me it was stage 3 (wether he was mis informed or did not want me to know I m not sure) which was an exstensive surgery involving taking his entire lower jaw, 90% of his tongue, all of his teeth, and removing 3 tumors including one in a lymphnode, in the same surery they did the reconstruction which entaled the removal of his right tibia to rebuild his jaw, muscle and tissue removed from his chest to build his new tongue and two skin grafts. Apon diagnosis he said “if it is curable i will go through treatment if not i WILL NOT prolong it”, so that brings me to a lot of confusion and wondering if he is being mis led to thinking he can beat it or with this extensive treatment and medical advancments it is in fact a great possibilty?? My father has been a heavy drinker and smoker for longer than my 23 years and the drinking has not helped in him being very honest at times even if the truth sounded better, so at this point i am at a loss as to what to believe and have not had the chance to speak with the drs privately. next step is chemo and radiation and now i am concerned wether or not he should under go it if he in fact does not want to prolong anything. To sum up my rambling, is or can (being stage 4) his painfull journey lead to beating the cancer??? any advice or exsperiences would be so apriciated :)

June 25, 2012 at 7:15 am
(157) hypoglycemia says:

cancer.about.com is super!! But loads very slow

what is hyperglycemia

June 30, 2012 at 10:14 am
(158) Phyllis says:

My husband was diagnosed with cancer of the epiglottis in November of 2010. He was treated with 35 daily bouts of radiation with concurrent chemotherapy – finishing at the end of February 2011. It was tough, but we felt good about it. His doctor(s) didn’t tell us his “stage”, but I read a lot about it, and decided it was stage IVa. His follow-up appointment in October showed a recurrent, aggressive tumor that had spread to various lymph nodes. In November, he had a neck dissection, brachy (radiation) therapy, and 2 rounds of induction chemo therapy that he could barely tolerate. He has a feeding tube and a tracheostomy. The treatment has been the worst I’ve ever seen or heard of, even though he rarely complains and is upbeat by nature. The doctor still doesn’t speak about the stage, prognosis, or his survival time, even though I have asked – she just doesn’t believe it would be helpful. I think, from what I’ve read, that it is now stageIVb. Is there a doctor out there who could guide me a little? I function better with the truth, and I want to know……

July 9, 2012 at 1:10 am
(159) jimmy says:

I would like everyone to wacth ” Run from the cure ” A film made from a nova scotia man who found the cure for cancer …Which is high grade hemp oil …and i think everyone in the world should get together to promote this lovley medicine ..Do you have a loved one with cancer ? I would certainly give it to my loved ones ! Mr simpson has already helped over 5000 people with hemp oil ..So spread the word and lets get a jump on this deadly desease !

July 23, 2012 at 3:25 pm
(160) Erika says:

As a cancer patient myself I could not care about bedside manners. My oncologist did not tell the truth about my cancer (stage IV) at first. I was upset of his mannerisms. I had to tell him over and over again; I have a right to know, so I can prepare and organize my matters before I die or get too sick. I had to constantly be educated and seek for facts. My oncologist finally realized that I would seek answers elsewhere, and started co-operating. Of course, the fact I was healing made it easier for him to discuss of all the facts directly with me and my spouse. If I had to choose between nice bed side manners and factual knowledge about my conditon, I would choose knowledge over manners.

August 2, 2012 at 2:12 am
(161) T2N3MO says:

Help! Why is no one talking about the radiation induced insomnia, chronic fatigue that rest can’t remedy and the increased post-therapy incidence of depression? Then there are the daily cognitive battles; short term memory loss, debilitated attention span, and last but not least, the sobering of spirit as in a personality change to the more sober from what had been a quick to laugh, smile often temperment. All this can be hidden fairly well with folks deceived that all is good and grateful, to the point of admiring attitude and complementing the ‘can do’ portrayed. I know.

Sincerely,
T2N3MO

August 2, 2012 at 11:09 am
(162) Dennis Stage 4a survivor says:

5 years ago it was determined I had state 4a base of tongue cancer, it had moved onto my lymph nodes in the my neck, it was the enlarged lymph node that was the first signal anything was wrong. I had to force the VA to get me to a ENT to look into it. It took me 3 months to finally see one (goverment healt care at it’s best). At that time I was told I had a 50% of a cure, turns out at the time the cancer society said it was incurable. I reacted badly to the chemo and could not finish the treatment, They put me on Urbatux (sp?? instead plus I got maximum radiation. They now call me their miricle. I am one of the lucky ones who can swallow and have a small amount of saliva.
I don’t know what I would have done had the doctors told me it was incurable and they asked me if I wanted to fight it. I probably would have said no. I really don’t know.

August 3, 2012 at 5:27 pm
(163) Patrick says:

I was recently diagnosed with Stage IVa, T1, N2b, and M0 (zero). N2b makes it Stage 4a because of the number of lymph nodes involved-between 4 and 6. However, there is a HUGE difference between HPV+ cancer-which I have-these cancer cells just “melt away” as I have been told and there are numerous articles speaking on this from reputable sites-American Cancer Society, Journals and other articles. I bring this up b/c I have found at least one article that mentioned Mr. Douglas may have had HPV-not sure if it was said to be positive or negative, but positive has a comparably better prognosis. Also, Mr. Douglas was a heavy smoker and drinker, by his own admission. It is my belief, based on my Dr’s and a slew of reputable reports, that if you have HPV (+) and especially if you were not a heavy smoker and/or drinker that your outlook is almost rosy, when comparing it to these less than 10% 2 year survival rates people are posting here. I know of someone personally who had exactly the same diagnosis I do, was 50 at the time of his diagnosis (I am 44) and was in bad shape-overweight (I am in great shape), and had smoked, drank and did drugs for much of his life. He is already past his 5 year mark with NO recurrence. So, while I myself appreciate honesty in Dr’s-believe me I was questioning them doggedly until I had some hard facts, I have been reassured by the resident who first looked at the back of my throat via an endoscopy thru my nose, the actual Dr who did the same, the Head of my radio team and the head of my chemo teal have ALL said the same thing-these cells melt away and the prognosis is very good, per survival rate. My ENT-and we butt heads a little bit trust me, told me, “If i were to choose a head and neck cancer, yours would be it.” …

August 3, 2012 at 5:28 pm
(164) Patrick says:

…And form my radio guy, after I asked questions about a neck re-section, to which he almost chuckled after i been peppering him with questions, said, “You’re case is pretty basic and straightforward. You shouldn’t need any of that”. From my chemo guy, whom I just met this past Wednesday, (after the attending Nurse commented to me that my case was “boring” as I have no risk factors or family history and am in great shape and eat right), “The bad news is you have cancer, the good news is this has a high rate of survival; it’s not 100%, it’s not 90%, but it is a high rate.” When I asked him about a procedure being more than week away-getting my PEG tube insertion, he then said: “It’s fine, we are not in a panic hurry to treat this-two weeks away is fine.” From the vast reports i have found online, Stage IV for THIS type of cancer, which Michael Douglas may have had, the outlook is rather positive, and not just for the two year survival rate-we are talking 5 year rate, and if you get that far, especially without a recurrence I think one should have a VERY good chance at living for many a year after that. Another relative of mine had late stage pancreatic cancer-as that is when it is diagnosed-over 15 years ago!! And it still living and it NEVER came back. if there is a downside it is that he cant eat all his desserts and heavy red meats etc. as I am part Italian, and some of those pastries can be downright bad for your health but great tasting. And he LOVES his life. There is realistic and there is pessimism-let snot confuse the two-I understand some people are hurting after not having it “given to them straight.” And maybe its hard to believe that others can fare better and that doe snot seem fair if your loved one fought a very courageous battle but, unfortunately, lost. That doe snot mean this will happen to everyone else. It might be a tough pill to swallow but it is the truth. …

August 3, 2012 at 5:29 pm
(165) Patrick says:

…Why play sports games when there is a huge underdog. And the underdog has been winning a lot of Superbowl lately. namely my Giants beating the Patriots BOTH times in 3 years. Hey, I think we should get more upset over lottery (horrible chances) than we should about the chances we, or a love done, have in beating ANY type of cancer. If you give up, then Yes, you will perish. And that is NOT to say that those who have perished had given up, but if you want straight talk from Doctor’s then we all should be able to handle straight talk, based on facts, form others as well. Check this link out. There are MANY more that back this up: http://www.reuters.com/article/2010/06/07/us-cancer-throat-hpv-idUSTRE6565NJ20100607

August 3, 2012 at 5:42 pm
(166) Patrick says:

And if people here do not have HPV (+) I have still found many 2 year survival rates (supposedly a good marker for determining the approximate likelihood of a metastasis as well as giving a better idea to the length of life that are much more encouraging than the less than 10% one. I am NO Doctor, but I may have to post what I have found. The bottom line for me is…Good Luck everybody! No-one wants to hear this diagnosis, but with medicine getting better and different procedures being exxplored-hypertherapy, robot scoop, and proton therapy, I think the future looks brighter but we really have to make available the latest in treatments to EVERYnody; that is my only concern. …Hemp Oil-hi grade-seems to work well in treating/curing some cancers and pain free. The one thing that seems to be true, when using hi grade Hemp Oil, is that is is much more effective in managing pain relief-if someone is terminal-than morphine, but there are many assertions that it works well in treating cancers. Stay Well everyone.

August 6, 2012 at 5:43 am
(167) lgyu says:

Iam a 3 yrs nasopharyngeal carcinoma survivor since 2009
Current happy with my life , after treatment both chemotherapy and Radiation in parallel, got alot of side effect. my toung is still has some effect salivor

August 15, 2012 at 9:03 am
(168) theresa says:

I am a twelve(12) year stage 4 throat cancer survivor. My odds were not very good at all. At every yearly visit for the first 5 years the Dr’s (ENT and Radiation doc) could not believe I was still here. I can say for me personally I KNOW prayer and the power of positive thinking is why I survived. My biopsy showed the cancer to be 2+ yrs in the making. My choice for treatment was a Radical Neck Disection vs. chemotherapy. and aggresive radiation treatment. Oh yes and I had no saliva and they told me whatever I had at the 2 year point would be about all I was getting. YAAAAY my 7th year I got 75% more and today I am at almost 100%. Same with my taste returning to normal, I got back to normal more after my 7th year. Still having some issues with sugar burning my tongue. My shoulder has not drooped since the muscle removal, that was supposed to be a definite and hasnt happened. Although my shoulder has dropped about an inch in the past 2 years. Other than that I’m good and feel so blessed.

August 31, 2012 at 6:43 pm
(169) Mark says:

I have spent the better part of a week reading all the threads written from Sept. 2010 to present. It has been informative, maddening, made me cry, and because of this, I would like to share my personal experience with neck cancer, from diagnosis through treatment until now, 4 months after the completion of my treatment.

About 2 years ago, I noticed a mass in the right side of my neck, lateral to the trachea, about halfway between my clavicle and mandible. It was non-painful, and I had no other signs or symptoms other than the mass. I brought this up to my primary care physician (PCP). My PCP sent me to an ENT for a biopsy and evaluation. He aspirated clear fluid from the mass, which measure approx. 4 cm. in diameter. After the aspiration, the mass was hardly detectable, and the fluid was sent off for pathology. Within 24 hours, the mass was back. A few days later I got a letter in the mail stating the fluid aspirated was benign.

Fast forward about 18 months when I went in for my physical. When my PCP palpated my neck he became real concerned and ordered a CT scan of my neck. The radiologist’s report came back stating “4.5 cm. mass completely encircling the internal jugular vein, origin NEOPLASTIC vs. antiinflammatory.” A 2nd ENT aspirated more of the mass and 2 days later the news came that the mass was positive for Squamous Cell Carcinoma. 2 weeks later I underwent a radical neck dissection where he removed the internal jugular, facial nerve, a large portion of the muscle in my right neck, all the right-sided salivary glands and 58 lymph nodes. 1 lymph node came back positive. 2 weeks later I started radiation (5 treatments a week for 6 weeks), and 3 rounds of Cisplatin chemotherapy. They had to stop the chemo after 2 rounds because I develop marked ringing in my ears and they thought I was in danger of losing my hearing.

August 31, 2012 at 6:44 pm
(170) Mark says:

The side effects I had from the treatments, aside from the post-op pain, were MAJOR nausea, vomiting, profound fatigue, difficulty swallowing, (even water or saliva), all food lost it’s taste, except water which tasted VERY salty. I had had a PICC line placed for the chemo and a PEG tube placed for tube feedings since I was unable to eat. I forgot to mention the serious dehydration in the middle of all this and I had to go in for IV fluids every day for 6 weeks.

As far as the staging of my disease, my medical oncologist (not my radiation oncologist) showed me my staging. It was Stage 4, (T)umor 1, (N)odes 1, (M)etastasis 0. I was pretty freaked when I saw Stage 4, but he explained that any time the cancer invades a lymph node, it is automatically Stage 4.

I did ask both the oncologists about the chance of survival. They both said that with “my” type of cancer and the results of the surgery and follow up PET scan, my chances for survival for 5 years was 75-80%. If the P16 test came back positive, the survival went up to 90%. P16 positive means the cancer was caused by the HPV virus, the same virus implicated in cervical cancer. I was also told that with my type of cancer, it is a secondary, not a primary cancer. They found no site of a primary cancer, further reinforcing the argument for HPV caused cancer.

I want to close by wishing all of you the best of luck. If anyone has any questions or if you think communicating with me might help, my email address is “mprines1957@cableone.net”

August 31, 2012 at 11:37 pm
(171) Niecy says:

My husband with whom I have been happily married to coming up (30) years now, was diagnosed this past June with throat cancer, starting at the base of his tongue. He too had a sore throat which was missed and dismissed by our primary care Dr. If not for my persistance that my husband could be suffering from sleep apnia (spelling) it would not have gone any further. I mentiond to the doctor on MORE than (1) occassion that my husand was snoring much louder at night and he would stop breathing.. we had (2) options, first go to the ENT doctor to c if he had a closed septum or have a sleep study done. We chose the ENT doctor, this is when we found out my husband has stage IV throat cancer, which upon seeing the ENT there was now a growth on his Lymph node of a little under 3 cm, within one week and a 1/2 the growth became almost (5)cm. needless to say, the cancer is aggressive which called for a changed in plans. No longer did we have time to get stuff done we wanted to do before radiation, instead the following Monday he was to begin a (3) type Chemo drug (2) of which were given in a (7) hour drip the third was in a carry pouch, the poison to be administered every minute for (5) days, 24/5…….
The GREAT news is the cancer was aggressive and the doctors treated it aggressively and the nearly (5)cm growth turned into (0)cm, could no longer be felt. Maybe (0) is not the correct verbage, but the most important part is this…. IT COULD NOY BE FELT nor SEEN ANYMORE!

September 21, 2012 at 10:27 pm
(172) Bill Clyne says:

I’m 66, 6 years out from stage 4, unknown primary, was found in the lymph glands – the usual – ND, (4) types of chemo and 33 rads – still have some dings from the treatment but still happy to be around. Take it day by day, was able to get back to work. Support from my wife was uppermost, friends and a support organization a big help (SPOHNC – direct link lower down the page on the attached campaign link).

http://www.indiegogo.com/head-and-neck?a=1034285

Many more have it worse than I do – my prayers to those who are still fighting the battle

October 4, 2012 at 12:31 am
(173) Gofftinee says:
October 5, 2012 at 5:28 am
(174) actioseontops says:

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October 25, 2012 at 12:15 pm
(175) Joyce says:

OK, Tony, I am curious about this. My husband was diagnosed with Stage IVa squamous cell cancer of the left periform (sp?) sinus with a metastases in a lymph node on the left side of his neck. 3 months after his radiation and chemo treatments were completed a PET scan was completed (March of this yea) and we were told they could not find any more evidence of the cancer. Then earlier this week when he had his 3 month routine check up with his ENT we were told he needed to have a CAT scan done of his neck because the doctor found something (left side of neck area) he want to have scanned. What are the “chances” (percentage-wise) that the cancer could have returned to that location? I need to be realistic about this matter as we are full-time RV travelers and he really wants to travel from our current location in OR to the AZ/CA state borders. He is still “tossing his cookies” occasionally even though the chemo treatments ended Dec 23, 2011. I am also having trouble getting him to put and keep weight on. During the process he lost about 80 lbs going from 190 to 110. Pushing him to take up to 8 cans of Jevity 1 in addition to what I can get him to eat (he always says he isn’t hungry) I was able to get him up to 117 lbs. Then within a week he dropped back down to 114 lbs. It is hard to to get him to let me give him the tube feedings even though he understands it makes a difference in his weight loss/gain. The doctors have even made sure he had a cannabis medical card in hopes that he would eat more on his own and gain weight. Any straight-forward words of advice for this care-giver would be gratefully appreciated.

October 27, 2012 at 12:54 pm
(176) Lucy says:

My husband has been diagnosed with Squamous Cell Carcinoma cancer. It’s in his neck, lymphnodes…and where else we don’t know know yet. He has seen 4 doctors, before he got to the first one that done anything to find out what was wrong with him. The two doctors in the middle just made money, that’s it. The curent doctor kind of danced around the cold hard facts, tried to soften the blow I guess. I want to know all of it, don’t sugar coat it. Give it to me straight and stop wasting what is left of our lives together. We need to know, don’t give us false hope. We have decisions to make and these need to be made in a hurry. I found Tony’s honesty to be what I needed to know. Thank you Tony.

October 30, 2012 at 4:59 pm
(177) Bill in Virginia says:

Glad I found this blog..I just NOW returned from my EENT who (well I will tell you in a minute after I give some background…I was diagnosed with Stage 1 throat (voice box/larynx) cancer almost two years ago after a biopsy from my EENT doc..He recommended ‘standard’ radiation which I DID do…33 treatments and he pronounced my cancer (on left side of voice box) ‘gone’.. Last Dec. 21st I had the first of two rotator cuff surgeries and IMMEDIATELY after the first surgery, my throat started hurting..I put up with this for some time and then my primary care doc suggested I go back to EENT for checkup. I thought the anesthesia tube from the first rotator surgery had damaged my voice box, but biopsy revealed that after a little over a year, my cancer had returned…This time the EENT’s recommendation was to have my voice box totally removed and have a hole in my throat.. I sought a 2nd opinion with an oncologist at the recommendation of a friend who had had a procedure called Proton Radiation Therapy..My EENT said I could NOT have radiation a second time OF ANY KIND and still recommended removal. Saw him (EENT) again today at the recommendation of the oncologist who wants to start Proton Therapy next week and he wanted EENT to scope my throat and take pictures for him which he did NOT do ..scoped it only. I asked him what if I did neither the therapy or the voice box removal and he said I would be dead in 6 to 9 months..The two doctors seem to have drastic difference of opinions and I have noticed on this thready that almost no one has addressed the issue of voice box removal..any helpful suggestions would be appreciated if anyone has walked in my shoes..one type (standard) radiation or the Proton..thanks

October 30, 2012 at 5:02 pm
(178) Bill in Virginia says:

I just posted a LONG post and don’t see it..trying this to see if I lost everything I typed..If it just takes time, ignore this..thanks

November 6, 2012 at 11:45 pm
(179) Tom Jones says:

No, Tony is NOT wrong, and those who criticize his bedside manor are sophomoric if not a bit retarded. This is not about touchy feely crap, it’s about fact – and on that basis, Tony is simply correct, story over.

November 14, 2012 at 1:15 pm
(180) Dr Rob Bate says:

As a busy dental surgeon with Hospital and GP experience of oral carcinomata, I would simply quote my first Consultant, ” Never say never, never say always”
I have seen patients succumb to this awful disease when everything seemed favourable, I have seen patients with advanced disease alive and well fifteen years later.
Always hope, keep the faith and live for the day. It is not always hopeless and poor prognostic indicators may not apply at an individual level.
There is always hope.

November 16, 2012 at 5:44 am
(181) Gary says:

I have went thru treatments for stage four throat cancer. Which is intremission at this time. I have asked if you never have smoked, some other reason is for the cause. Not long after my finding out what I have the, my employerr install signs say that the building that i work in has aspestis in it and it is hazards to wrk inside. I am a supervisor, employed by the goverment so i am stuck between a rock and hard spot. The full tine Government have been scudule to take a base line physical. But the state employes have been refused this same phsical. What our the means to by pass the state process and get the same benifits andcare for my workers. It is a little late for me. Any suggestions would help otheres from going through what I did.

December 4, 2012 at 1:53 am
(182) christy says:

My father inlaw was diagnosed with stage IV throat cancer 2 weeks ago! The only reason I came to this website was to learn more about his diease and hopefully read some inspiring stories! For the ones who lost your loved and to the ones with the inspiring stories god bless u! To the ones on this page with so much negativity god bless u too but it would be nice if u would refer back to jays comment! If u don’t have cancer or u are not a care giver to a cancer patient u don’t have a clue! I can say that because I’m a stage IV metastatic breast cancer patient. Stage IV cancer patients hear a lot of negative so I’m going to give a little positive tonight! Mine as I have just told u is metastatic. I have it in my right breast in my lymphnodes behind my chest wall on my adrenal gland 2 spots on my stomach and 2 spots on my liver! I am still living and I am past my 2 year mark! So to the positive people on this sight that inspired me with your stories I hope this one inspires u! God bless u all!!!

December 4, 2012 at 3:43 am
(183) Marilyn says:

I have squamus cell cervical cell neck cancer. This appears as a lumpy tumor on the outside of my neck and now enveloping my ear. It has doubled in size in the past month and is about 5 inches long, 4 inches wide,1 1/2 nches thick on the surface of the skin. I’m awaiting CAT scan results. I do not appear to have anthing in my mouth that I can feel. I am 75 yrs. old. I do not feel I am a good candidate for radiation or chemotherapy. I have a good appetite but very little energy. I was told this is a secondary cancer site. I wasn’t told what stage it is and had to ask what type cell it is. I would appreciate any information I can obtain and would welcome emails. I have difficulty in finding replies to my posts, mostly because I can never remember where I found the site the comments came from. rosabonheur@msn.com

December 28, 2012 at 12:20 am
(184) Vicky says:

TONY IS CORRECT AND HONEST AND LET ME TELL YOU I WOULD RATHER TALK TO TONY THEN TO LISTEN TO HOSPICE OR THAT SOFT SPOKEN NURSE WITH THE BULL SAYING EVERYTHING WILL BE OK AS A NURSE I WANT TO HEAR THE FACTS THE TRUTH AND NO BULL I DONT WANT ANY SURGERY IF I DONT HAVE A CHANCE I WANT PEOPLE TO BE HONEST and the Heck with the candy coating stuff be nice about it but be truthful so the person can make the choices they want with all the facts DOCTORS AND NURSES NEED TO BE TRUTHFUL WITH ALL FACTS! TO ALL PATIENTS INCLUDING CHILDREN!!

January 14, 2013 at 1:02 pm
(185) Tangie says:

Bedside manner only matters when dealing with patients and their families. Keeping cool and choosing the right words all the time takes up a tremendous amount of energy. Doctors and other health care professionals can let down their hair and be real people when they’re not at work. Personal attacks on someone’s character simply mean you have nothing of substance to add to a conversation.

January 31, 2013 at 2:29 pm
(186) Dr. Dwayne Truhlsen says:

Wow, the initial “medical professional” better go to school again. Stage 4 throat cancer does not mean it went to the lymph-nodes. It merely means it spread from the the tongue to the mandible tissue for example. And WOW…what an A%^$. Get a clue about peoples feelings and hope and get rid of your arrogance. The medical field is already overflowing w/ that and self righteousness!

February 3, 2013 at 4:58 pm
(187) Angela says:

I suffer from Breast Cancer, which for me, is basically a Death Sentence on my life, the thoughts of having Breast Cancer burns and itches simultaneously in my heart that i was dead alive (and looks hideous). I heard that Hemp Oil could help, and for the price i was willing to try anything that would save my My Life. What I found out was astonishing! It was instantly getting better and better and most of the virus are gone and just little medication left for me. It’s also a light, i am very grateful to Doctor Henderson for Selling the Hemp Oil for me and his Medical Advises, for all those that have problems with Cancer Please Please Kindly let the Doctor Know at:hendersonmedicalservice@gmail.com,
He saved my Life that is why i will keep on giving his testimonies.
Angela
United State of America

February 12, 2013 at 11:39 pm
(188) Larry says:

I was diagnosed with Stage IV throat cancer 6 years ago. Mine was a result of the HPV virus – the same one that gives cervical cancer to women. The survival rate for this type of throat cancer is substantially better than the historical survival rates (historically throat cancer patients were heavy smokers and drinkers). If Michael Douglas had this kind of cancer – his survival rate may be much better.

February 26, 2013 at 5:46 pm
(189) Cindy Mozi says:

My dad just died of colon cancer 5 days ago, but a week or two before that he started having soars in his mouth and throat he couldnt swallow or talk very well, but the day he died when he was taking his last breath a very hard lump the size of a orange formed in his throat can anyone tell me what that could of been

February 27, 2013 at 1:26 pm
(190) LAURIE says:

my father has stage IV throat cancer. He’s 86. He isn’t eligible for treatment, nor is he able to have a laryngectomy. (if that is spelled wrong, too bad. :) ) I wish there were some miracle thing to cure him. But, his doctor laid it on the line, no “b.s” which my Dad would have seen through ANYWAY, and Hospice is now in place. If there is anything I have learned about life, is that nobody gets out of here alive. Cherish the moments we can with the dying. In this case, my Dad. Be there for him, let him know I love him and keep him in comfort. Peace.

March 8, 2013 at 5:49 pm
(191) Andre says:

Greetings from Florida! I’m bored at work so I decided to browse your website on my iphone during lunch break. I love the information you provide here and can’t wait to take a look when I get home.
I’m surprised at how fast your blog loaded on my cell phone .. I’m not even using WIFI, just 3G .
. Anyways, awesome blog!

March 10, 2013 at 5:35 am
(192) Kim Powers says:

Hi i found this blog interesting and thought i’d drop a line. I was diagnosed Dec 2007 cup syndrome ,metastasis x2 in neck lymphnodes with pressure on the jugular and a hidden primary tumour.I was told with full force, double neck dissection ,radiation and chemo, then i might have 1-9 months to live.I decided to take my therapy in my own hands, which meant as much info as possible and try to make the right choices for myself. I refused everything, and just had the two metas removed.Its now March 2013 i am still alive, it has been a long 5 years with various side effects due to the operations, nerve damage, muscle atrophy of the left shoulder,partial paralized throat (due to tonsillectomy) 13 CT’s MRI’s every other type of examination with cameras. Biopsies (which i now refuse because they are pointless and damaging).Last MRI in November 12, carcinoma base of the tongue . January 2013 burst artery in throat, the doctors told me and my loved ones i am about to die.7 days later i left the hospital. During my stay i kept control over my drug intake, too many pills numbs your senses and you lose your natural immune response. My advice is to come to terms as quickly as possible with the fact that we are all born and die. I found the quality of life beats the quantity. Love to all

March 26, 2013 at 4:59 am
(193) ,y 2 cent says:

Four years and 5 months ago I was diagnosed with Stage 4a Squameous cell carcinoma, on my tonsil and growing up into my nasal cavities, (Sounds grosser than it really was.) My oncologist wasn’t the warm and fuzzy type. He told me the best treatment kills everyone over sixty, but because I was an othewise healthy 45 yr old, he thought I could survive it. My radiologist toldme that before we started the 32 radiation treatment, she had to tell me that it was the harshest thing they are allowed to do to a human being.
The first week of chemo I found out why so many people die from the treatment. They start youwiht a chemo combination that saps your energy and makes you incredibly restless. The older folks just paced or fidgeted themselves to death.

During the next thirty-two radiation and ten chemo treatments, they microwaved my head from the inside out, and ran so much liquid posion through me that I lost 25% of my body weight. It was a good two months before I could have solid food.

The doctors were harsh but honest. When I looked too weak to handle that days poison, tey refused to give it, because they wanted to save my kidneys. But, it was the many people praying over and for me, that made the difference. Thetreatment would probably have worked, but I would not have survived it without the prayer.

I’m fat again, and seem poised to pass the five-year NED threshold. Throat cancer doesn’t have to be adeath sentence, if you have people who care.

May 9, 2013 at 4:20 am
(194) Alycia says:

Thank you for the auspicious writeup. It in fact
was a amusement account it. Look advanced to far added agreeable
from you! By the way, how can we communicate?

May 9, 2013 at 9:45 pm
(195) captchuz says:

Here’s some fresh info right from the horses’s mouth… Last week I was diagnosed with stage IV throat cancer. My radiation oncologist sat me down and told me not to worry as he could cure me. Cure? I asked… ‘yes, cure’ he responded. Based on my research and assessment, I was elated! He made my week and I told my family and friends so.
Today the bubble burst! I went to my chemo oncologist… a highly regarded professional in his field. He told me in no uncertain terms that I am in deep trouble… assuming the chemo and radiation work, my survival rate is minimal… maybe a 50% chance for another 3 years or so. So it all boils down to who you want to believe. I’m 73 and my experience tells me that the Chemo guy is right on target. I wish I had gone to him first, before I got everyone’s hopes up!

May 12, 2013 at 6:27 am
(196) melany says:

hi,
I am wondering how great and positive you all are. My husband has nasopharinx cancer, it is awful. it was diagnosed at stage 3 when there were limf nodes on his neck growing out. After surgery and radiotherapy there were 7 months free of everything and we decided it is over, and doctors told how good everything is, that there is no worries etc.. after that tumors came back, now all his neck is full of them , no surgery possible, stage 4 and chemo therapy together with radiotherapy.. all body is full of spots, tumors on he’ s neck are blowing out, all is terrible, but the WORST IS THAT DOCTOR STILL IS GIVING GREAT NEWS, that is is allrgiht, it is just hard time for a moment and patients like that are living for 30 years… it is all sooooooooooooooo terrible, because, we have 2 kids, boys, and my husband is believing to doctor and spending time in his business not with family.. I can see this is an end, and I want him to be with us, with me, with children, but he is so SURE THAT HE WILL BE ALLRIGHT AFTER THIS CHEMO will end, that there is no need to spend extra time with family…
I am WASTED, it is hard to be beside and see all this, I am a person who want to know the truth, I am telling hard truth as a truth and I prefer to know my enemy for fighting, but there is no chance I can make my family happy now… and I am blaming doctor, everything would be different if he would tell my husband the truth…

June 20, 2013 at 8:21 pm
(197) Throat Cancer patient says:

Just finished treatment for stage 4 cancer at the base of the tongue. Stage 4 for this type of cancer is defi Ed differently than stage 4 with other types of cancer. Also, when there is HPV involvement, the survival rates can go as high as 90%. Douglas’ publicist is saying the same things my doctors at Cleveland Clinic told me, and that my own research has borne out.

July 17, 2013 at 9:56 am
(198) andrvew says:

Cancer, the nastiest disease ever, 4 people in my family had it 2 are gone and now my brothers got stage 4 with tumor in the neck, lungs, and on liver, its very aggressive and survivability is very short, unfortunately for most with stage 4 the prognosis is grim, and yes there are many survivors, but I will soon lose my dear brother, best friend, and life will go on but with a big piece missing, what gets me is that after all the research, money, and advances in medicine, that they cannot come up with something other than rad. and chemo. This whole thing has taken its toll on him and the family is devastated, so we all pray, and make him as comfortable as possible. Our hearts go out to anyone suffering from cancer of any kind, may god bless their souls!

July 22, 2013 at 5:54 am
(199) Sadia says:

My husband was diagnose with stage 4 throat cancer last year september, he had radiation and chemo theropy done – now after about 5 months his throat smells like poo. Can anyone please tell me if something is wrong?

August 19, 2013 at 9:47 am
(200) Sadia says:

My husband was diagnose with stage 4 throat cancer last year september, he had radiation and chemo theropy done – next month it will be one year nice the doc diagnosed him, but now he is getting bad stomach and chest pains – can someone tell me if this means that the cancer is back?

August 24, 2013 at 10:31 pm
(201) Kimberly says:

My father is now in the end time stages of throat cancer. It is devastating to see what he is enduring. His treatments have been very intense. Those being radiation and chemotherapy. The radiation has been a cause, sadly, of many of the symptoms he is now experiencing, along with the chemo. In Christ alone does my father and my mom and our family ultimately put their trust. I feel deeply for anyone experiencing this horrific disease, celebrity or common. Money nor status will be a savior. There is only one and He loves us all! His name is Jesus.

September 12, 2013 at 8:50 am
(202) Karen says:

Kimberly, I’m curious how your dad is doing. My dad was diagnosed with Stage III. I know we have a very tough road ahead of us. Initially he was going to have his larynx removed, a permanent breathing tube put in and live with an electric voice box the rest of his life. After finally convincing him he should obtain a second opinion, he’s opted for the chemo and radiation.

September 23, 2013 at 9:57 am
(203) Julian says:

I was diagnosed with stage 4b throat cancer (base of tongue spread to neck lymph nodes) just over a year ago. My oncologist suggested I had a 50% survival chance over the next 5 years. That sounds pretty good to me bearing in mind that we all know death is inevitable, luckily I lived to reach 60 and I regard 60 not out as a half decent score. I wouldn’t mind making 75 or even 80 (although realistically that is not very likely), but I do view the fact that knowing your days are numbered is a far greater benefit than not knowing. I chose to follow the suggested treatment of Neck Dissection, Radiotherapy and Chemotherapy and suffered the consequential nasty side effects of dry mouth, no taste and complete lack of energy, However, remaining positive is of paramount importance and gradually I am beginning to feel less tired, occasionally I can taste food and my salivary glands appear to be slowly improving. I currently take no medication and so far appear to be cancer free, although I know the risk of recurrence is very high..so will not take life for granted. To all fellow sufferers I would recommend you learn about NLP (Neuro Linguistic Programming) a powerful process to aid the mind to control your body. Never give up whatever the odds!!

November 25, 2013 at 7:38 am
(204) Mark Ray says:

Say what you want about tony,but 1)he isn’t speaking with the pt. and2)he’s absolutely correct..

December 23, 2013 at 11:58 am
(205) Elizabeth says:

Hi, I have a question. If anyone could answer I will really appreciate it. My friend is 52 years old. Last year in November she was diagnosed with Stage 4 Throat Cancer. She had radiation and chemo and this year in July her doctor told her that was cancer free. After a couple of months she went for her follow up, they did a bipsy and the cancer is back but in another place, it was in the voice box. She still has a trach and a feeding tube from last year. Last week she had the surgery to remove the voice box and also a part of her pharyx.. After the surgery the doctor said she removed cancer. Now she is recovering from that 13 hour surgery and everything. My question is, is she going to survive all of this? I mean the doctors said she will be fine and she will be able to eat because they reconstructed so she could eat. But i am concerned the cancer might come back and I dont want the doctors to keep giving her treatments that wont work. She has suffered too much already. TIA

December 23, 2013 at 12:02 pm
(206) elizabeth says:

Sadia, did you take your husband to his doctor? that same thing happened to my friend and they told us that the cancer was back.

December 28, 2013 at 9:43 am
(207) Buck Rucinski says:

My long run in laws!!! They make a cute couple you should not they?!?!?

January 21, 2014 at 11:45 pm
(208) Brandon Hewitt says:

I understand where both sides are coming from on this one. I myself would have put it close to the way Tony did. While it may seem a bit harsh, its the brutal honest truth. No sugar coating or false promises of recovery. Just stat ed facts and reality of life and what to possibly be prepared for next. Im currently watching my father fight his battle but as Tony stated. Its hit the noids and pinatia breaks. Brain n stomach first now the entirety of his body dadly. .maybe a lil easier next time tony but best of luck as a doctor. Keep the honesty!

February 4, 2014 at 12:25 pm
(209) http://skuteczne-operacje.pl says:

Everything typed made a lot of sense. However, what about
this? suppose you were to write a killer headline?
I ain’t suggesting your information is not good., but what if you added a headline that grabbed folk’s attention?
I mean Stage 4 Throat Cancer Prognosis is kinda boring.
You ought to glance at Yahoo’s front page and see how they create news titles to
get viewers to click. You might try adding a video
or a related pic or two to get people interested about everything’ve
got to say. Just my opinion, it might make your
blog a little bit more interesting.

February 23, 2014 at 6:39 pm
(210) GbYvM says:

I have struggled with a tumor which i realize is different than throat cancer. My father was just diagnosed with cancer of the mouth, throat cancer and a cancer in his stomach the size of a grapefruit… our dear friend has cancer in his bones from prostate cancer… we have been hearing tremendous things about ESSIAC. We ordered some from Swanson because they are the cheapest around even than wholesale other places. Please check it out. Some very trustworthy people have given us incredible testimonies. It is also amazing to eat aloe vera (i eat the actual plant), and drink your water with baking soda in it to keep it alkaline. I don’t mean to offend anyone. I hope this comes across as some little ray of hope somewhere~

March 8, 2014 at 8:07 am
(211) cat tree says:

This began in the Garden of Eden when Satan tempted Eve: “You shall be like God. Folks consistently fawning around you, delivering foodstuff, shelter and a loving atmosphere will get truly boring. This is almost feline abuse in the eyes of your precious princess or your precious prince.

March 10, 2014 at 12:16 am
(212) Gary from Oz says:

What an interesting read all of this has been and it (the debate) has been going for so long. Amazing. I had (have?) stage 4 throat cancer and went through a rough time with chemo and radiation. But I never believed it would kill me, although I must admit, when I was going through treatment I thought it would. But now, apart from feeling tired, I feel really good. I am at my ideal weight, working out regularly and I’ve bought myself the Harley Davidson I promised myself for my recent birthday. I’m even thinking of getting married again! So, I’m not going to take too much of what you are saying to heart. For now, I am being less serious/anxious about life/work and the things that used to annoy and frustrate me. I’m into live and let live and enjoying every minute I have. In know not the hour nor the day, but sure I’m not sitting back waiting for it. (Wish I had the money to do more stuff, though). God bless you all. It’s a beaut, sunny day downunder by the way. XX

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